I was diagnosed two and a half years ago with PBC (doctor told me over the phone!) - by positive AMA and I saw a gastro about 2 months later. I was not given another appointment with the gastro for a check up (say six or twelve months later). I did not have a biopsy or a scan. My test results are in range - slightly elevated ALK - but I eat an exemplery diet. Gluten and grain free, lots of vegetables and salad, bit of fruit - apples and berries, eggs, meat, chicken, fish. I do eat dairy - milk, yoghurt. I cook from scratch and do not eat ANY prepared, take-away or junk food, sugar. I also have Hashi, Addisons, Celiac, Myasthenia Gravis - these are the ones I know about!!!
Should I insist on another appointment with the gastro and ask for a biopsy and/or scan? I would like to know how much damage has been done to my liver.