Anxious and scared

[Fleen]

Hi , diagnosed GPA 2000, several flare ups.

Caught covid Nov 2021 2 hospital admissions with severe breathlessness. 2 trial with 2 infusions and O2. Now have long Covid. Last 12 days, severe breathlessness on any exertion O2 Sat's 69 initially then climbing to 93 on room air. On antibiotics and Pred down to 20mg. Anyone having symptoms like this?

Also Igg levels falling, now 2.4

[Nadine99]

My husband has had GPA since 2010. He was hospitalised with Covid at the end of Nov & was in for two weeks. All the problems he had before have been exacerbated by Covid, his legs are to the point where he now has a mobility scooter and his breathing is so much worse. Just a small amount of effort needs a lot more sitting to recover.

[AmyS1]

If your oxygen Sat's are less than 92 you need to call 111!!!

[2534]

I’m really sorry to hear that. Must be very scary. At least now they know so much more abt Covid and treatment. Hang on in there. May blessings come your way.

[Turvy]

Wishing you a rapid recovery. As has been said above - so much more is being discovered daily, so hopefully new treatments will soon help. Bless you.