Vasculitis patients living in London? Do you... - Vasculitis UK

Vasculitis UK

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Vasculitis patients living in London? Do you think you could benefit from a support group, meeting people who face similar challenges

John_Mills profile image
John_MillsVolunteer
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vasculitis.org.uk/events/va...

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John_Mills
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6 Replies
Paprika60 profile image
Paprika60

That would be helpful and lovely. I have written to the person in charge of London but nothing came through. Please keep me posted if anything comes through. Many thanks!

2534 profile image
2534

Possibly! Give it a go!

EGPAGuy profile image
EGPAGuy

Hi John..in touch with a couple of people in London area..be good to get some others roped in. We all have egpa

Vasc72 profile image
Vasc72

I may be interested , I have ANCA vasculitis mpa

Countryman1 profile image
Countryman1

Hi John,I may be interested ; I live in Berkshire and unsure if there is a support group in this area. I was diagnosed with most probable EGPA last year.

Turvy profile image
Turvy

I may be interested. I live in Hertfordshire. I’m still wary of travelling into London because of COVID and any risk of infections. I’m terrified of another bout of Vasculitis, for which I was hospitalised suddenly (after my first COVID vaccination) last April (2021) and am still recovering (further complicated by Cirrhosis of the liver).Maybe a zoom forum? It would be helpful to speak with others. I’ve never known anyone else with Vasculitis and it is very lonely.

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