How Can I change my Hub: I used to be part of... - Vasculitis UK

Vasculitis UK

7,939 members6,970 posts

How Can I change my Hub

Investigator1 profile image
8 Replies

I used to be part of the Vasculitis hub but don’t seem to get any notifications anymore instead I am receiving notifications from PMR/GCA hub. They are lovely people but I can’t add any useful contribution. I want my mates back.

Written by
Investigator1 profile image
Investigator1
To view profiles and participate in discussions please or .
8 Replies
PMRpro profile image
PMRpro

Is this a long standing thing or just over xmas/NY? HU has been messing up notifications since xmas - possibly because they are altering software.

The best approach is to contact them via the Support Centre and pester them. They should be back now - don't think anyone has been in for the last 10 days! Or if they were, they'd eaten too many mince pies and were asleep ...

When my account is messing about I make a point of going to the forum I want every day and looking at the internal Alerts list. Do you still get VasculitisUK included on the Daily Posts email? Have a look at your email setting too.

DorsetLady profile image
DorsetLady

Just double check everything your end first, and then contact HU as suggested by PMRpro - we have both had issues over holiday period (as have others).If your profile shows you as a member of PMRGCAuk - you can leave it.

Main1234 profile image
Main1234

I receive notifications for both . The information I have received re steroids form PMR pro is really helpful and informative, she has a wealth of knowledge and expertise as does Dorsetlady .

Hope you had a good Christmas and New Year

2534 profile image
2534

I had the same - all notifications from PMR and none from Vasculitis. If you look at the top of your home page you will see which communities you have chosen. I was PMR and Vasculitis. I can’t recall selecting PMR but may have looked at them and replied to someone. Anyway if you take out PMR you should no longer get notifications from them. Take care.

Investigator1 profile image
Investigator1 in reply to2534

Hi 2534 exactly the same for me but how do I take out PMR?

Main1234 profile image
Main1234

At the top of the home page there is a box with a “tick” next to write . Just press the tick box and it will ask if you want to leave that community

AndrewT profile image
AndrewT

Dear Investigator1,

A 'Simple' suggestion, for you....Contact The Administrators, they should be able to Help. Something has clearly 'Gone Wrong'.

Hope that you are 'Back' soon, my friend. Happy New Year 2022

AndrewT

Investigator1 profile image
Investigator1 in reply toAndrewT

Thanks Andrew I think I am sorted now.

Not what you're looking for?

You may also like...

You may want to take a look at this - Vasculitis discussed briefly on the This Morning Show

You might want to see this, it was on itv today , this morning, 30 mins into the programme....
Suzym2u profile image
Moderator

How can I predict flare in MPA

My daughter have MPA since 12.2010 She is now in drag induced remission.Her lung and kidnay has...
tamidi profile image

change to leflunomide

Hi can anyone give any advice on changing to this drug.. not keen on side effects I have Sle, on...
gco34 profile image

Latest Update on the HU Upgrade

Hi Everyone, Here's some news and a list of the current priorities the HealthUnlocked developers...
RichardE profile image
Volunteer

Misdiagnosis, can I claim?

Hi, I am not sure where I stand with this but I got misdiagnosed with microscopic polyangiitis. I...
BilboBagshot profile image

Moderation team

See all
zoe69 profile image
zoe69Administrator
Allotmental profile image
AllotmentalAdministrator
JaneLE profile image
JaneLEAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.