Pain after Rituxan?

[1985kim]

Hi-

I'm 61 years old. Diagnosed with CNS Vasculitis in 2016.

Treatment Rituxan and steroid Infusions. Every 6 months to a year of remission.

I High dose Cannabis. The cancer protocol. It helps with disease.

I want to know about your pain? I know CRP. All the markers. Is anyone in as much pain, but different from Rituxan? Intense pain. You don't want to move?

If anyone has pain ruling how you live? Do they treat it? What works for you?

[Dancerina]

My son has CNS Vasculitis- he is now on a lot of Neurontin l, several blood pressure meds, & also Elavil at night. He is recovering from a brain hemorrhage & crainectomy! But before that, he did Rituximab- it did not stop flare ups, but it did not cause pain that wasn’t there before. Before the hemorrhage, he had headaches almost daily. Now he hardly has any pain at all. He’s on monthly Cytoxan but eventually he will switch to something else. He has been on several prednisone tapers only to have flare ups when below 15 mg.