Are you being treated with steroids for your rheumatic condition? Including vasculitis

[John_Mills]

Are you being treated with steroids for your rheumatic condition? Including vasculitis

We need your help to test a new questionnaire about steroid impact on quality of life for people living in the UK, USA or Australia.

vasculitis.org.uk/news/surv...

[Reboundman]

Done!

[Rodelinda]

Yes I am on Prednisolone I can do the questionnaire

[shella]

Yes am happy to fill in questionnaire

[PaulinemcC]

Hello john i have done the questionnaire I’ve been on steroids for 12yrs I’m only on low dose now except when I get poorly then back up to high dose again hopefully the answers I give will be of some use .

[Galaxy2]

Completed the questionnaire John

[Chipper03]

I’ve completed the questionnaire, John

[M3LZY]

Hi John, I've not been given anything. Due to it being from covid.

[Pollie]

Yes, I can do the prednisolone q/airre. I think I completed one a few years ago?!

[Katie18]

Hi John I’m on low dose of hydrocortisone now which are a type of steroid but have been on very high doses of prednisolone - do you think I should take part in the survey - or is it aimed at people on high doses of steroids now? Thanks cath

[Red-head44]

Happy to help if you still need people

[Kenneth]

Hi John, I have tried on numerous occasions to log onto the links you leave on your questions etc but I cannot seem to succeed, can you help?

[John_Mills Volunteer in reply to Kenneth]

Other members seem to be able to follow the links and they certainly work for me… maybe check your own computer settings?

[SeaSongLyn]

I am taking Prednisolone, Co-Trimoxazole and Cyclophosphamide infusions (6 over 13 weeks, 5th in 10 days), then onto oral immunosuppressant. I have ANCA vasculitis, diagnosed 5th November 2020. I'm interested in completing the questionairre. Cheers, Lynda