what do vasculitis ulcers look like compared with shingles

[1943bonnie]

I have GPA Vasculitis, i have had it for 2 years now. at this time i am feeling quite well.

i have had flares of very painful sores off and on through this disease.My GP said it was shingles, even though i had a shingles shot a couple of years before. does anyone have a picture of Vasculitis ulcers, i never been convinced i had shingles. i would appreciate

your help.

Thank You,

Bonnie

[Nadine99]

My husband has had GPA since Oct 10. He has been treated over the last 6mths for an ulcer on his head. The ulcer was as big as 2 x 50p's but is now much smaller. I have some rather horrible pictures of it but if yours is something different then I won't post them.

[zzcat]

Just a note....you can get shingles more than once and even if you have been vaccinated.

This does not mean this is what you have but just to keep an open mind. I’d be surprised if it was shingles however with it going on so long as yo7 describe.

Biopsy time perhaps?

[EdieBD]

Shingles are whitish bumps which can get crusty. Ulcers are more concave and scabby. Less painful IMHO

[Andypandy69 in reply to EdieBD]

That's not true pan ulcers are excruciating pain.

[Chazzi]

I have four very painful vasculitis ulcers on my left foot and they are really painful. I have had singles a couple of times and they are completely different. Singles are small water filled blisters in a cluster while the ulcers on my foot started out as small painless black marks under the skin then after a couple of years though no reason that we can come up with, they just broke out into painful ulcers which look like round cavitys in the skin. But maybe everyone is different but that's my take on them. Good luck.

[danerd1960]

I have some horrible pics but will only post them if you want to see them.

[1943bonnie in reply to danerd1960]

yes i wold like to see them

[danerd1960]

When I figure out how to post I will send them!

[Christophene47]

I will try to send you couple of photos from a text book next time. What do your vasculitis lesions look like, if you can describe , or upload a photo?I am glad you are feeling well. That's wonderful news. I. am at almost 30 months into it; just 4 mg of methylpredisone.

I cannot live normally now. But every day , I moan, whimper, etc. just to get out of bed. But I do get up.

I've noticed I've been shuffling my feet when I walk; mainly in house with slippers,( but I think it is the stiffness in the hips and knees )( I feel really low these days;). Overtaken with new doctors. scans, lab work etc., I fear that this will become my permanent life style. I can't walk normally for more than a half city block.

I have made one compromise to adapt my home a bit. I put in a stair rise between the first and second foors, and it also be can be used as a dumb waitor. But I can't make it too easy for myself. Thanks to those who took the time to read; would like your feedback , if you would. And especially to 1947 Bonnie whose post I just highjacked. Sorry, it wasn't on purpose. Do you think the symptoms I mentioned are consistent within the umbrella PMR?

[1943bonnie in reply to Christophene47]

Thank you christopher. you hang there-sending you light and love.

God Bless,

Bonnie