A newbie here—just joined. Could you please explain to me if it is possible for me to have tested positive for p-3 c-ANCA six months ago but not have the GPA Vasculitis my specialists suspect??
I have had severe attacks to my eyes, ears, mouth, throat, esophagus, vocal cords, chest, sinuses, complete GI tract, and loss of feeling in my toes over the past 16 months. I was on supplemental oxygen for six months for severe dyspnea. Yet over time almost all these symptoms have disappeared! My tests are showing no activity to biopsy now for a confirmed dxs!! One artery biopsy just came back yesterday—negative!
Doctors at Cleveland Clinic were “perplexed” after I spent a week there!! I detoxed myself from 21 prescription medications last April. That helped clear up my severe GI issues. Only a painful, pressured , tinnitus ear remains today.
Is it possible that those medications had triggered the ANCA response which caused all the symptoms? Could I actually not have GPA Vasculitis since I can’t get a biopsy confirmation? Where do I go for answers ?? I sobbed for two hours yesterday from shear exhaustion and frustration. Thanks for reading.