I don’t know where or how to begin to describe my journey, because after reading the many posts here, seems I may have been battling more than I realized. Over three years ago I started having benign positional vertigo; however, I started to feel dizzy throughout the day. Then, I started experiencing facial and temple pain. After seeing many doctors, I went to University of Pittsburgh (in the US), had hours worth of testing, and was diagnosed with Migraine Associated Vertigo (MAV). Was told my vestibular system and right ear were damaged—though, at the time, my hearing was fine. I’ve tried every drug to treat the MAV, with no relief from the dizziness or temple pain. I have chronic ringing in my ears, and now have developed some low frequency hearing loss in right ear, which doctor said you see in autoimmune disease. For many years, I have suffered from dry eyes, and multiple corneal abrasions (a layer of cornea pulls off)— extremely painful. Last summer, my eye doctor referred me to a rheumatologist, as she suspected Sjogrens. My blood work revealed positive c-anca, ACE, ANA, and 1 25 dihydroxy vitamin D. I was sent for chest X-ray and lip biopsy, which were negative. Had pulmonary function test, which showed a slight decrease in the way my lungs diffuse— was told it’s not terribly abnormal. I had awful right hip pain for over a year, which cleared after 8 days in prednisone. The rheumatologist initially thought Sjogrens, but the blood tests point to a gramulatous disease. He’s mentioned limited Wagner’s, and possibly GCA. I had an ultrasound of the temporal arteries—negative. Next week a PET scan. I also suffered with shoulder pain and stiffness for over two years. I had three rounds of cortisone shots and physical therapy, which didn’t seem to help. Over time, it simply improved on its own. My bigggest issue is the pain in my temples, dizziness, nausea, and ringing in ears. Also, over two years ago, was diagnosed with gastritis (bleeding in stomach), after having an endoscopy. I’m waiting to see a specialist in NYC. Does anyone else have chronic dizziness?