Came across this whilst searching for something else. It's a PhD thesis on Vasculitis and fatigue. It's on my " to read " list. Vasculitis U.K. memebers took part in the original research. Hopefully it contains some good tips to help combat the fatigue that is a problem for so many of us.
Study into ANCA associated Vasculitis and fa... - Vasculitis UK
Study into ANCA associated Vasculitis and fatigue

My goodness this brings back many memories for myself and Susan. Must try and read through the whole article at some point, but suspect it may take me some time. Susan volunteered as a healthy control, sadly I volunteered too, as a patient with vasculitis but I was refused, due to not being so well, but it did not stop me going along as a spectator. It was so Interesting and fascinating to spend the day with Dr McClean and his team.
John, when I have the time I plan to read it through and hopefully summarise the main findings.
I think there is increasing evidence that fatigue associated with Rheumatological diseases responds well to a graded exercise programme etc. I do think there are things that patients can do to help themselves if only they knew about them!