Wegener granulomatosis my mother suffering a... - Vasculitis UK

Vasculitis UK

7,876 members6,908 posts

Wegener granulomatosis my mother suffering at age of 61 what was life expectancy

sam05 profile image
7 Replies

My mother suffering Wegener granulomatosis last 1year and 7 months now dises affects her lower boday her doctor was not given retuxitumb till today. If it given than what was life expectancy after that treatment

Written by
sam05 profile image
sam05
To view profiles and participate in discussions please or .
7 Replies
DevonLottie profile image
DevonLottie

That can depend on a number of factors and so isn't easy to answer. What is important is to ensure your mother is treated by a consultant with experience and knowledge of the disease. I've had gpa for 17 years - long before rituximab was available as a treatment - and am still going strong as are many others.

sam05 profile image
sam05 in reply toDevonLottie

Thank you for reply. Now I am tention free from her side.

sam05 profile image
sam05 in reply toDevonLottie

Yes she was treated by we'll known rheumatologist. In pune ,Maharashtra, India.

sam05 profile image
sam05 in reply tosam05

She has swelling in her boday. Mostly on her face is that the part of this gpa or side effects of her medicines.

Now days she is not able to walk with her right leg. Is that leg temporarily affected .

DevonLottie profile image
DevonLottie in reply tosam05

I'm afraid I'm not a doctor so can't really answer those sorts of questions. My advice would be to write down your list of questions and go through them with the consultant. I do hope your mother improves on the rituximab.

Balderick profile image
Balderick in reply tosam05

This is what is known as moon face & is very common when prednisolone or corticosteroids are used. If she has been on steroids then this is a probable answer

philtw profile image
philtw

I had PAN when I was 21yrs and now GPA at 51yrs, Im 55yrs and still kicking......it depends on how soon it is found and get under control.....

Not what you're looking for?

You may also like...

suffering from Wegener granulomatosis ,Had 2nd infusion of retuximab but still having haeavyness in foot,&pain?

had retuximab 15days before but still having foot heaviness and pain in foot. not able to walk...
sam05 profile image

Worse Days of My Life cont.

I also have hand tremors, and, on occassion, shaking of am arm or leg. I hurt everywhere and the...

Can you tell me your experiences of small/medium cell vasculitis?please

My daughter has been told today that she appears to have vasculitis,which has damaged her heart...
nanny4 profile image

Bronchocentric Glanulomatosis?

We have literally had to fight to get a diagnosis of bronchocentric glanulomatosis for my Mum,...

My friend has had a kidney infection and has been diagnosed with Vasculitis. She has developed red spots on her body.

Hi just on here looking for some more info on vasculitis. My friend has had a kidney infection and...
Cher50 profile image