Hi. Ive been reading and learning a lot here.
I believe my hubby has vasculitis. Sorry, bad memory. The four letter one that includes nasal polyps sinusitis and awful chest involvement. Plus he has the definitive rash which I have found nowhere else. Looks like a circular coral reef photod from the air, ragged line, looks normal inside and outside ring. Varies from nipple to shoulderblade size under arm, to size of thumb nail size. Burning itching. Tired ill.
Went to doc, usual story ignorance. But put him on steroids. All calmed down. Only three days, wham, back again.
He has prostate problem abd quack tried to say skin allied to prostate problem. Not that I could find. Saw urologist, said same. Phew. Went to see other GP would not give him blood test results. Requested formally.
Went back to quack, I primed hubby with giant clues re vasculitis. No comprende but on steroids. Is there optimum dose at first?
Right. Doing it the hard way.
Where in the north west are there vasculitis specialtists please? This doc has him on nothing else. My hubby has osteo and cant remember word. Crumbling bones. Been bone scanned. Takes weekly meds but I know from here must take supplements ie calcium. What type is best? What other supplements would you recommend until I can get him proper diagnosis, or not!
Failing nhs specialist, will save and get private consult. What area does vasculitis come under please? Is it Rheumatology? Hope not my Rheumy (Lupus et al, useless).
Thanks for your great responses. Sorry for brain fog, hope you follow me. You are all gems
If you know me