Exploring the Informational Needs for Vascul... - Vasculitis UK

Vasculitis UK

7,857 members6,880 posts

Exploring the Informational Needs for Vasculitis Patients and their Carers - Research Study

Suzym2u profile image
Suzym2uModeratorVasculitis UK
8 Replies

Vasculitis specialists Dr Richard Watts, from Ipswich Hospital and Dr Janice Mooney and research assistant Karly Graham, from the University of East Anglia are exploring the informational needs of people who have vasculitis and people who care for them. If you would like take part in this research study please follow this link. If you receive the hard copy newsletter , which is due out early next week, there will be a hard copy survey. Please do not complete both!! Thank you Susan 😊

vasculitis.org.uk/news/news...

Written by
Suzym2u profile image
Suzym2u
Moderator
To view profiles and participate in discussions please or .
8 Replies
Sima1952 profile image
Sima1952

Done.

Sima1952 profile image
Sima1952

Done

jackrussell profile image
jackrussell

This research paper does not list my Vasculitis,and will not allow completion of the questionnaire until all questions are answered, as there is no option to add my Vasculitis I cannot take part.

Suzym2u profile image
Suzym2uModeratorVasculitis UK in reply tojackrussell

Is there an option to say "other" and you write they type of vasculitis in the box provided

jackrussell profile image
jackrussell in reply toSuzym2u

There is not a "other " option it is only listed as " do not know ".

Suzym2u profile image
Suzym2uModeratorVasculitis UK in reply tojackrussell

I will give feedback

MiaTilehurst profile image
MiaTilehurst

Survey does not specify my type of Vasculitis so I cannot submit my results, same problem as jack russel. Also I replied 'No' to having a carer but survey say questions on what carers do for me are flagged as having to be answered.

Suzym2u profile image
Suzym2uModeratorVasculitis UK in reply toMiaTilehurst

Will pass your feed back on

Not what you're looking for?

You may also like...

New App to Support Vasculitis Patients and Research

If you have ANCA vasculitis which has involved your lungs, nose or sinuses, are now in remission,...
Suzym2u profile image
Moderator

Healthy Volunteers Wanted for Dr Andrew McClean's Research Project "Why do patients with ANCA Associated Vasculitis Experience Fatigue?"

Are there any Healthy people out there who are willing to take part in Dr Andrew McClean's research...
John_Mills profile image
Volunteer

Vasculitis UK Funding for Research 2015/2016

This is a page from the website explaining the latest round of Vasculitis UK funding for 5 research...
Suzym2u profile image
Moderator

Research Study - Survey Regarding Discontinuing Immune Suppression in ANCA Vasculitis

Discontinuing Immune Suppression in ANCA Vasculitis Suppression of the body’s immune system is at...
John_Mills profile image
Volunteer

Very interesting day at the Vasculitis Masterclass for Large Vessel Vasculitis yesterday in Warrington.

There were around 50 people present, most were doctors who have an interest in Vasculitis. Prof...
Suzym2u profile image
Moderator