Posts - Vasculitis UK | HealthUnlocked

Hi Everyone Unfortunately when we booked the 30th March we didn't realise it was Mothers Day. I have managed to change it to the Sunday13th April. It is still...

Moderator•10 years ago

1 Reply

West Yorkshire Support Group Change of Date

Hi Everyone Unfortunately when we booked the 30th March we didn't realise it was...

LynneJ

Vasculitis UK•10 years ago

Please share with others, for Rare Disease Day February 28th 2014, these Inspirational stories from people who have Vasculitis, who have shared their stories...

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What are the organisers details for the Support Group in Cardiff/Wales please?

Badgerswood23

•10 years ago

1 Reply

Updated page on the website "Living with Vasculitis", "Vasculitis and the Media"

Please share with others, for Rare Disease Day February 28th 2014, these Inspira...

Moderator•10 years ago

I have developed livido reticularis rash on my limbs due to my vasculitis. It looks so unsightly. Just wondered if anybody else suffers from this and if it...

Does livido reticularis ever go away?

I have developed livido reticularis rash on my limbs due to my vasculitis. It lo...

xxbluebooxx

•10 years ago

12 Replies

HealthUnlocked have been approached by Optomen Television, BAFTA award-winning producers, to help them get in touch with members.

Do you have a medical problem that worries you? Would you like an opportunity to get a specialist doctor’s expert opinion of your condition? Or would you like...

Do you have a medical problem that worries you? Would you like an opportunity to...

Moderator•10 years ago

i was hoping you would be able to give me some advice on two issues i hope this post wont be to long but i will try to explane it all to you hi iam a 50 year...

home visist from atos

i was hoping you would be able to give me some advice on two issues i hope this ...

jakethemus

•10 years ago

8 Replies

Action Day for Rare Diseases in Wales.

Dr Chris Jones, deputy chief medical officer, for the Welsh Government being presented with a Vasculitis UK Awareness Rabbit, Victor, as part of an action day...

Dr Chris Jones, deputy chief medical officer, for the Welsh Government being pre...

Moderator•10 years ago

Does anyone have sciatica like pain? In other words pain radiating down both legs from your bottom! I've just started with a pain like this (yesterday) and...

Sciatica. A pain in your butt?

Does anyone have sciatica like pain? In other words pain radiating down both le...

HiveMind

•10 years ago

13 Replies

P-ANCA positive result

Why do you have to have another blood test if one is already positive. Esr count was 50, Dr said should be between 10-20 for female, so have inflammation. My...

Why do you have to have another blood test if one is already positive. Esr coun...

Linmur1957

•10 years ago

8 Replies

Simple guide to Data Sharing. This is a reasonable well balanced view regarding data sharing

The link below was tweeted this morning by a couple of GP's. The comments and links below the article make interesting reading too. So please do read it. John...

The link below was tweeted this morning by a couple of GP's. The comments and li...

Moderator•10 years ago

A disabled married couple discuss how the bedroom tax has affected them....

This programme is on Dispatches, Channel 4 at 8pm this evening. For those who are interested or if the same problem has affected you.

Moderator•10 years ago

How many of you have either done research or experienced yourself if a healthy diet can dramatically make your autoimmune conditions better or worse? I have...

Diet and Autoimmune Conditions - can you heal your body through diet?

How many of you have either done research or experienced yourself if a healthy d...

Ajanowiak

•10 years ago

21 Replies

Listen to Christine talking on BBC Radio Wiltshire about her own experience with "Wegeners Granulomatosis" (GPA)

The interview is only on line for 6 more days. Christine was interviewed yesterday morning by BBC Radio Wiltshire, also being interviewed are husband Clarry...

The interview is only on line for 6 more days. Christine was interviewed yeste...

Here's my first hand account of my fight with Churg Strauss Syndrome. Hopefully it will help others. Churg Strauss - My Story...

Moderator•10 years ago

4 Replies

Churg Strauss Syndrome - My Story

Here's my first hand account of my fight with Churg Strauss Syndrome. Hopefully ...

abbottsys

•10 years ago

4 Replies

Burning skin

Not sure whats going on anymore with all my symptoms. Recently my skin bemomes really hot and feels like its burning. I got someone to straighten my hair...

Not sure whats going on anymore with all my symptoms. Recently my skin bemomes r...

yorkshiregirl44

•10 years ago

Leaving so I'm at a loss there are no drs where I live that's ever treated it or even heard of it any input would be appreciated thanks.

What kind of Dr do you see for anyone with h.u.v.s I live in the United states I've been seeing a immunenologiest since diagnosed and he is

Leaving so I'm at a loss there are no drs where I live that's ever treated it or...

tmd74

•10 years ago

Im new to this site and just wanted to run some strange symptoms by you. I have Hashimotos so alot of my symptoms maybe down to that. What concerns me is every...

Bowel symptoms

Im new to this site and just wanted to run some strange symptoms by you. I have ...

yorkshiregirl44

•10 years ago

19 Replies

How long do grommets last in an adult?

slbussey

•10 years ago

Having lost use of both feet and one hand, was then diagnosed with Churg-Strauss disease within a few days (I live in France so I was lucky), I am two months...

Regenerating Peripheral Nerve pain?

Having lost use of both feet and one hand, was then diagnosed with Churg-Strauss...

RareStap

•10 years ago

14 Replies

The Swindon Advertiser. The Generation Gap, with a concert at the Arts Centre this weekend.

COPING with the effects of a life changing disease has inspired father and daughter team Clarry Bean and Abby Mansi to perform a fundraising concert. The...

COPING with the effects of a life changing disease has inspired father and daugh...

John_Mills

Volunteer•10 years ago

I had my latest meeting with ENT consultant and plastic surgeon yesterday. Both have now agreed that it's best I don't have any re-constructive surgery on my...

My latest news

I had my latest meeting with ENT consultant and plastic surgeon yesterday. Both ...

suffolkgirl

•10 years ago

Has there been any research in to whether vasculitis is hereditary? I have 5 children and would like to be forewarned just in case thankyou

Starburst

•10 years ago

Hi my dermatology consultant has told me he believes I may have PAN, I have no other symptoms other than a rash on my limbs. Apparently the pattern of the...

Has anybody heard of or suffer from a cutaneous type of PAN?

Hi my dermatology consultant has told me he believes I may have PAN, I have no...

xxbluebooxx

•10 years ago

http://www.vasculitis.org.uk/news/innov8-biomedex-anca-workshop...

The 17th International ANCA and Vasculitis Workshop 2015 will be held in London on the 19th – 22nd April 2015.

Moderator•10 years ago

would it be possible to get a copy of the understanding vasculitis leaflet so I can take it in to work and show to family and friends Thanks

vasculitis leafley

would it be possible to get a copy of the understanding vasculitis leaflet so I ...

molliecatone

•10 years ago

12 Replies

I would like to know, please, Has any doctor who treats you for your Vasculitis ever advised you not to have a tattoo?

I would like to ask a question, because so many people who have Vasculitis do ask me this question about tattoos on a regular basis. As far as I am aware "no...

I would like to ask a question, because so many people who have Vasculitis do a...

Hear how we are improving the quality of care and share your views on what else we could do to improve the patient experience....

Moderator•10 years ago

5 Replies

Buckinghamshire Healthcare NHS Trust is inviting local people in Buckingham to get involved in the Big Conversation event.

Hear how we are improving the quality of care and share your views on what els...

Moderator•10 years ago