I had my latest meeting with ENT consultant and plastic surgeon yesterday. Both have now agreed that it's best I don't have any re-constructive surgery on my nose,( although they would do it if I wanted), as the prosthesis is so effective. I'm glad we got that sorted!
I now have to wait for another appointment with a view to getting another one made. The current one doesn't fit quite as snugly as it did, and I feel I should have a spare anyway!
Consultant recommended Sterimar spray for my nose instead of saline washing, but didn't offer it on prescription. He just said try it and then see if GP could be persuaded to put it on my list! Some hopes I fear!
Has anyone else tried Stderimar and how did you get on with it?
The synacthen test result shows that my adrenal glands are working ok, which means I can't blame the reduction of steroids for my extra tiredness and headaches! However, it seems likely that the effects of the Rituximab may have been wearing off and the new dose hasn't properly "kicked in" yet. So I need to give it time!
Dexa scan booked for 24th Feb, so maybe I'll be able to dispense with the Alendronic acid and Adcal D3?
My prednisolone issues
My mother just diagnosed GPA, help needed
Off-loaded by my consultant, or, perhaps not.
