Hi my dermatology consultant has told me he believes I may have PAN,
I have no other symptoms other than a rash on my limbs. Apparently the pattern of the rash is indicative of PAN. I have also had a skin biopsy and numerous blood tests. My consultant says i may have a cutaneous version of this ( I am still booked for full body CT scan to check for other organ involvement).
Has anybody been told the same or actually suffer from PAN or cutaneous PAN? as I would love to hear from you, as I am unsure what to expect. My consultant seems to be really positive about a good outcome for this condition and says treatment could be discontinued in a year or so ( if all is well) but from what I have read it can be quite a serious vasculitis and some people have really had it tough. Scared