Why do you have to have another blood test if one is already positive. Esr count was 50, Dr said should be between 10-20 for female, so have inflammation. My Dr admitted he knew very little about vasculitis. Said another anca test was to try and pinpoint which vasculitis it was as drugs used to treat were very strong. Meantime I have asthma, tingling/burning sensation in both legs. Severe livedo reticularis in legs trunk and arms. Spots which bleed, never heal on legs, elbows and shoulders. Prescribed tablets for Raynauds, high blood pressure, asthma, sinusitis for which I had a NESS operation, IBS with severe distented abdomen, stomach pain, back ache and chronic pain in buttocks, restless legs syndrome, headache, ringing in ears and otitis in ears. I reckon I know more about vasculitis than my doctor! When I question they are very vague. Although my symptoms seem to be mild I am concerned my vasculitis, which I believe to be Churg straus syndrome will get worse. Anyone out there had the same sort of brush off?
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