Vasculitis UK has representation in various medical professional groups dealing with Vasculitis and other NHS bodies and NICE. The more people with Vasculitis who are members of Vasculitis UK the stronger the voice when it comes to dealing with NHS administration, the UK government and the medical profession. VUK also works with similar organisations representing people suffering from other rare diseases. eg:- Lupus UK, Rare Disease UK and Genetic Alliance UK.
All Vasculitis UK members have an option to receive the hard copy bi-annual Vasculitis UK Newsletter/Journal. This is sent by post to members in the UK.
You can then recycle the hard copy newsletter by taking it to your hospital or GP waiting room or sharing with your GP, Consultant or Specialist Nurse.
You also have the option to receive the VUK newsletter pdf version by email.
All members also have the option to receive the periodic Vasculitis UK e-News
Vasculitis UK is run totally by unpaid volunteers who all have Vasculitis themselves. vasculitis.org.uk/about/mee... There are no offices and no paid staff.
The aims of Vasculitis UK are:-
To support those suffering from vasculitis diseases and their families by providing information and advice.
To inform and educate those with vasculitis about their illness so that they are empowered to take greater control of it.
To work with other organisations and medical professionals to improve the recognition, diagnosis and treatment of vasculitis diseases.
To raise awareness of vasculitis disease among medical professions and the general population.
To enable vasculitis sufferers to contact others with vasculitis.
To encourage and support the formation and development of local vasculitis support groups.
To support research into the causes and effects of vasculitis and into improvements in the diagnosis of vasculitis and into treatment of people suffering from different types of vasculitis.
There are two types of membership available:
Associate Membership which is free and Full Membership..... for more details please follow this link. vasculitis.org.uk/about/joi...