A new UK strategy to help improve the diagnosis, research and treatment of rare diseases is expected to be launched by the Government today.
It is estimated that around 3.5 million people in the UK will be affected by a rare disease at some point in their lives.
some more information is now available pharmatimes.com/Article/13-...
about time very good news
Fantastic!
Another update ! pharmatimes.com/Article/13-...
You can read the key points and link to the government strategy document at: vasculitis.org.uk/news/rare...
PatriciaAnn
About time too- carry on, at this rate, and maybe some of these diseases may not be too 'rare' any more! Watch this space, so to speak!
I confess that I haven't read all the 'links' referred to here- the usual excuse, I'm afraid, too much else to do! I will try to keep 'up to date', as far as I can, promise!
Hope everyone is keeping 'well' (ok you can all stop laughing now, sorry!!)
Kind regards
AndrewT
The newly elected ePAG (European Patient Advocacy Group) patient representatives have now been announcedA question on behalf of someone else, asked this morning by email, a new member to Vasculitis UK
Are people with rare blood groups more prone to this type of condition?
New to vasculitisExperts believe a molecule in parasitic worms could help explain why worm infections can effectively treat a range of autoimmune diseases.
