Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,823 members • 6,825 posts

All posts for May 2013

Update on the prescription thing

I had a good chat with my new pharmacist and she explained how it works. The cheapest are always issued but if you require a different one e.g. coated, you...

I had a good chat with my new pharmacist and she explained how it works. The ...

LynneJ

Vasculitis UK•11 years ago

5 Replies

Hi, Have a really nasty tummy bug which started yesterday morning, Am due to go on holiday on Sat to Fuerteventura. Any advice.GPA

My husband really needs this holiday as he both runs his own business and cares for me. I have got good insurance and easy holiday when there. Worried about...

My husband really needs this holiday as he both runs his own business and cares ...

Theresak

•11 years ago

6 Replies

Does anyone else get frustrated by seeing a different Dr at each clinic at Addenbrookes? I do because it seems like ground hog day each time

Does anyone know why they do this? So frustrating having to go through years of symptoms over the previous dozen or so visits.

Does anyone know why they do this? So frustrating having to go through years of ...

maisie5

•11 years ago

11 Replies

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vascular consultants

I have a question,Purely out of interest, If Vasculitis is inflamation of the blood vessels why are Vascular Consulants not involved.I had surgery on my feet...

I have a question,Purely out of interest, If Vasculitis is inflamation of the bl...

jackrussell

•11 years ago

10 Replies

Is painful arm and chest a relapse?

My husband was diagnosed with WG in October 2012 and has been treated with cyclophosphamide, rituximab and prednisolone ever since. In recent weeks, his...

My husband was diagnosed with WG in October 2012 and has been treated with cyclo...

andyclairegp

•11 years ago

3 Replies

Prescription......Just found out how it works.

You may already know this but I just found out something interesting! I have changed pharmacies for my repeat prescription and went to the new one to...

You may already know this but I just found out something interesting! I have...

LynneJ

Vasculitis UK•11 years ago

5 Replies

Message for Liz Altfield

Hi Liz You gave me your e-mail address at the V-UK AGM, so I could send you information on the West Midlands Support Group. Unfortunately the address you gave...

Hi Liz You gave me your e-mail address at the V-UK AGM, so I could send you inf...

Chris-Bromsgrove

•11 years ago

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weight

Has anyone else NOT lost weight b4 DX ? I no it say weight loss is a sign But was wondering if anyone has been dx with out weight loss ?

Has anyone else NOT lost weight b4 DX ? I no it say weight loss is a sign But ...

NannyAlli

•11 years ago

17 Replies

Young Vasculitis UK

There has been a growing demand for a group for the younger generation of Vasculitis sufferers so that they can talk about their experiences with people who...

There has been a growing demand for a group for the younger generation of Vascul...

John_Mills

Volunteer•11 years ago

1 Reply

Has anyone with Vasculitis had particular problems with mosquito bites?

If so have you found ways of keeping the mosquitos at bay or treating the effects of the mosquito bites.

If so have you found ways of keeping the mosquitos at bay or treating the effect...

John_Mills

Volunteer•11 years ago

6 Replies

Increased sweating ..... Does it mean I'm reducing the steroids too fast?

Three months after my first rituximab infusions and I am being encouraged to lower my prednisone still further. I got down to 10 mg relatively easily(!), but...

Three months after my first rituximab infusions and I am being encouraged to low...

BronteM

•11 years ago

9 Replies

Poll rather than question really

How many of you smoked or still smoke ?

NannyAlli

•11 years ago

31 Replies

VASCULITIS AGM 2013 TODAY AT LONG EATON

Just wanted to say thank you to everyone who came to the AGM today. Special thanks to Dr Andrew McClean for his brilliant presentation "Why are people with...

Just wanted to say thank you to everyone who came to the AGM today. Special than...

John_Mills

Volunteer•11 years ago

9 Replies

Early satiety, can it actually make you feel, or be sick?

I have been suffering from bouts of this recently. I enjoy my first few mouth fulls of food, & then go right off it. If I try to push myself to eat more, I...

I have been suffering from bouts of this recently. I enjoy my first few mouth fu...

roobarb

•11 years ago

7 Replies

Quick update

Had MRI scan of my hips today at Addenbrookes. Letter said Rt hip, but pain in my left hip, so after some discussion scanned both! Short notice as only...

Had MRI scan of my hips today at Addenbrookes. Letter said Rt hip, but pain in m...

suffolkgirl

•11 years ago

3 Replies

back ache ?

The last two days i have been getting this lower to middle back ache. Has anyone else suffered from this ? I havent lifted anything heavy or twisted...

The last two days i have been getting this lower to middle back ache. Has a...

NannyAlli

•11 years ago

6 Replies

Disabled persons railcard

www.disabledpersons-railcard.co.uk or 0845 605 0525. Saw this in my mam's Saga magazine today. If you are hearing impaired (which I am through my WG) , you can...

www.disabledpersons-railcard.co.uk or 0845 605 0525. Saw this in my mam's Saga m...

Llinos

•11 years ago

3 Replies

Look out for the updated revised version of the Route Map for Vasculitis. June 2013

Currently being printed, hard copies should be available in June 2013. VUK are indebted to Dr Matt Morgan, Prof Lorraine Harper, Dr Marcos Martinez Delpero, Dr...

Currently being printed, hard copies should be available in June 2013. VUK are i...

John_Mills

Volunteer•11 years ago

Be the first to reply

Route Maps for Vasculitis and Spring newsletters posted to Ireland and New Zealand this week.

80 hard copies of the Route Map for Vasculitis have now been distributed to hospitals and clinics to Ireland along with over 400 Understanding Vasculitis...

80 hard copies of the Route Map for Vasculitis have now been distributed to hosp...

John_Mills

Volunteer•11 years ago

2 Replies

vasculitis foundation

just wanted to say ,that vasculitis foundation on facebook,is also an excellent site with nearly 2000 members worldwide for anyone with vasculitis very good...

just wanted to say ,that vasculitis foundation on facebook,is also an excellent ...

quinnster

•11 years ago

2 Replies

Night Sweats and terrible Thirst

For the last 8 weeks I have been having terrible night sweats and now I am experiencing an unquenchable thirst and consequentially a dramatic increase in trips...

For the last 8 weeks I have been having terrible night sweats and now I am exper...

tracynoe

•11 years ago

5 Replies

Knees and Ankles again

I am sorry to keep posting about mum but this site is so helpfull. Mum is due to see a her consultant on wednesday and I am going with her as she can barely...

I am sorry to keep posting about mum but this site is so helpfull. Mum is due to...

lilyloo

•11 years ago

13 Replies

i was wondering if anybody has been treated with a plasma exchange and if it was successful in avoiding dialysis

seggiehill

•11 years ago

5 Replies

Whst to expect with azathioprine

The hospital has taken bloods to see if I am suitable for azathioprine. What side effects am I likely to have? I know we are all different but I suppose I...

The hospital has taken bloods to see if I am suitable for azathioprine. What ...

miss-scarlett

•11 years ago

30 Replies

ANCA results

Can someone explain ANCA to me please. I had a positive result then a negative result. The doctor yesterday in A&E has sent off for another ANCA test to be...

Can someone explain ANCA to me please. I had a positive result then a negative r...

CathT

•11 years ago

3 Replies

Reminder about the SE London/NW Kent Vasculitis Support Group Meeting 18th May 2013

http://www.vasculitis.org.uk/events/se-london-nw-kent-vsg-may-2013

John_Mills

Volunteer•11 years ago

1 Reply

Agenda - Vasculitis UK Annual General Meeting - Sunday 12th May

Vascuitis UK - AGM - Sunday 12th May 2013 - Long Eaton Novotel NG10 4EP 12.15 - Meet & Mingle (Buffet lunch) 1.00 - Annual General meeting AGENDA 1....

Vascuitis UK - AGM - Sunday 12th May 2013 - Long Eaton Novotel NG10 4EP 12.15...

PatriciaAnn

•11 years ago

3 Replies

treatment for a flare

just curious,as to what happens if you have a flare what treatment are you given,surely you do not go back on the cyclophosphamide infusions and if it...

just curious,as to what happens if you have a flare what treatment are you give...

quinnster

•11 years ago

1 Reply

Consequences of stopping the immunosuppressants?

When I was suffering from a bad dose of campylobacter enteritis recently, my consultant advised me to stop taking mycophenolate mofetil. He did say to re...

When I was suffering from a bad dose of campylobacter enteritis recently, my con...

Ayla

Volunteer•11 years ago

5 Replies

Radio Interview

At the risk of over exposure.......Its that woman again........ Interview live on Radio Leeds this morning http://www.bbc.co.uk/programmes/p017kj90...

At the risk of over exposure.......Its that woman again........ Interview live ...

LynneJ

Vasculitis UK•11 years ago

4 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for May 2013

Update on the prescription thing

Hi, Have a really nasty tummy bug which started yesterday morning, Am due to go on holiday on Sat to Fuerteventura. Any advice.GPA

Does anyone else get frustrated by seeing a different Dr at each clinic at Addenbrookes? I do because it seems like ground hog day each time

vascular consultants

Is painful arm and chest a relapse?

Prescription......Just found out how it works.

Message for Liz Altfield

weight

Young Vasculitis UK

Has anyone with Vasculitis had particular problems with mosquito bites?

Increased sweating ..... Does it mean I'm reducing the steroids too fast?

Poll rather than question really

VASCULITIS AGM 2013 TODAY AT LONG EATON

Early satiety, can it actually make you feel, or be sick?

Quick update

back ache ?

Disabled persons railcard

Look out for the updated revised version of the Route Map for Vasculitis. June 2013

Route Maps for Vasculitis and Spring newsletters posted to Ireland and New Zealand this week.

vasculitis foundation

Night Sweats and terrible Thirst

Knees and Ankles again

i was wondering if anybody has been treated with a plasma exchange and if it was successful in avoiding dialysis

Whst to expect with azathioprine

ANCA results

Reminder about the SE London/NW Kent Vasculitis Support Group Meeting 18th May 2013

Agenda - Vasculitis UK Annual General Meeting - Sunday 12th May

treatment for a flare

Consequences of stopping the immunosuppressants?

Radio Interview

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