Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,815 members • 6,819 posts

All posts for May 2013

Help for contacting media to tell your story during Vasculitis Awareness Month

Thinking of telling your vasculitis story to the local media to help raise awareness of vasculitis during Vasculitis Awareness Month? Thanks to Catherine...

Thinking of telling your vasculitis story to the local media to help raise aware...

PatriciaAnn

•11 years ago

Be the first to reply

Anyone else hiding from the sun?

I'm feeling very frustrated. I love seeing the sun and it cheers me up but at the moment I am suffering with pains and odd sensations in my knees which seems...

I'm feeling very frustrated. I love seeing the sun and it cheers me up but at th...

laidbackreader

•11 years ago

19 Replies

New page on the V-UK Website - Newsletter & Magazine articles

New page started on the Vasculitis UK website - Newsletter and Magazine interviews. I've added Lynne and Giles , and I've asked Martyn for the link to his...

New page started on the Vasculitis UK website - Newsletter and Magazine intervie...

PatriciaAnn

•11 years ago

Be the first to reply

Want to take advantage of all our features? Just log in!

A week today is the Vasculitis UK AGM

A record number of people will be attending the Vasculitis UK AGM this year.. :-) http://www.vasculitis.org.uk/events/agm-may-13

A record number of people will be attending the Vasculitis UK AGM this year.. :-...

John_Mills

Volunteer•11 years ago

1 Reply

Benefits

I have been in Canada for a few months with my husband due to his job. I am unable to get an appointment with a vasculitis specialist for 44 weeks! My...

I have been in Canada for a few months with my husband due to his job. I am unab...

CathT

•11 years ago

3 Replies

Vasculitis and gall bladders

Has anyone had gall bladder involment with their vasculitis, I understand it can happen but can't find much on it. I have a polyp in my gall bladder that is...

Has anyone had gall bladder involment with their vasculitis, I understand it can...

CathT

•11 years ago

3 Replies

Good news about the shop

The good news is .........we now have paypal up and running! If you want to order your May Bargain Pack please visit http://www.vasculitis.org.uk/shop...

The good news is .........we now have paypal up and running! If you want to o...

LynneJ

Vasculitis UK•11 years ago

1 Reply

Enfield family spreads word about son's rare condition 'They were preparing us for the worst'

A trainee doctor spotted a rash beginning to develop and realised the 19-year-old Capel Manor College student was suffering from chronic vasculitis – in which...

A trainee doctor spotted a rash beginning to develop and realised the 19-year-ol...

John_Mills

Volunteer•11 years ago

5 Replies

"The spoon theory" - a must read!

Not sure if this has even been shared on here or not - but I came across it on one of the Vasculitis FB page and really enjoyed reading it. Christine really...

Not sure if this has even been shared on here or not - but I came across it on o...

Annie-F

•11 years ago

4 Replies

Local radio station

Local radio station put an edited clip on today and have done an excellent write up describing vasculitis and the charity. www.pulse.co.uk/news/local

Local radio station put an edited clip on today and have done an excellent write...

LynneJ

Vasculitis UK•11 years ago

2 Replies

nagative vasclitis

just had my usual check up and my renal DR is saying he thinks my vascilitis is not active although im still fatigued and still suffering from all the joint...

just had my usual check up and my renal DR is saying he thinks my vascilitis is ...

tracey65

•11 years ago

13 Replies

What does remission mean to you?

This is more of a pole I think, it would just be nice to hear how people in remission feel and what if any impact their vasculitis has on their life whilst in...

This is more of a pole I think, it would just be nice to hear how people in remi...

JaneLE

Administrator•11 years ago

7 Replies

Painfull knees and ankes, can hardly walk, can you take painkillers?

Hi Guys, My mum who has WG has just been prescibed Cellcept as the Aza didnt agree with her, the last week she has been in agony with her knee and ankle joints...

Hi Guys, My mum who has WG has just been prescibed Cellcept as the Aza didnt agr...

lilyloo

•11 years ago

6 Replies

May Awareness again

http://www.thebradfordadvertiser.co.uk/

LynneJ

Vasculitis UK•11 years ago

4 Replies

Fundraising for V-UK at the Manor Hospital, Walsall

Today I have been to the Manor Hospital in Walsall, West Midlands to be presented with a cheque for £365 for Vasculitis UK. Some of the apprentices at the...

Today I have been to the Manor Hospital in Walsall, West Midlands to be presente...

PatriciaAnn

•11 years ago

Be the first to reply

Route Maps for Vasculitis being Distributed to Consultants and Doctors in Ireland

Vasculitis Awareness Ireland have already distributed 40 hard copies of the Route Map for Vasculitis to consultants and doctors in Ireland and over 200...

Vasculitis Awareness Ireland have already distributed 40 hard copies of the Rout...

John_Mills

Volunteer•11 years ago

3 Replies

Sore gums

Anyone got sore gums after starting methotexrate I have always had sensitive teeth so use special toothpaste mouthwash and have generally good teeth hygiene...

Anyone got sore gums after starting methotexrate I have always had sensitive tee...

Voutton

•11 years ago

5 Replies

Walk the Worcestershire Way: Walkers Update and Event Detail

Dear Walkers WALK THE WORCESTERSHIRE WAY UPDATE Let me start by thanking you for signing up to Walk the Worcestershire Way for Vasculitis UK. The money...

Dear Walkers WALK THE WORCESTERSHIRE WAY UPDATE Let me start by thanking y...

Wellsie

•11 years ago

3 Replies

The latest poll on Vasculitis sufferers feet, fascinated me especially where it mentions burning feet.

My feet are never burning but for about twenty years they have always been hot to the point I prefer not to wear shoes or socks (I am frequently seen in...

My feet are never burning but for about twenty years they have always been hot t...

JimL

•11 years ago

5 Replies

West Country Fundraiser

The West Country support group are having a fundraising/awareness stall at the Volunteering in Health funday on Sunday 25 May on the Den at Teignmouth. If...

The West Country support group are having a fundraising/awareness stall at the V...

DevonLottie

•11 years ago

3 Replies

Yorkshire Post

Hi Everyone Check this out! http://www.vasculitis.org.uk/news/lynne-article-yorks-post Thanks to Cath for getting me there. Lynne

Hi Everyone Check this out! http://www.vasculitis.org.uk/news/lynne-article-yo...

LynneJ

Vasculitis UK•11 years ago

3 Replies

The London Vasculitis Support Group-First Meet-Sunday 26th May 2013

The London VSG is holding its first meeting at the Swiss Cottage Community Centre, Winchester Road, London, NW3 on Sunday 26th May 2013 from 10am to 1pm. All...

The London VSG is holding its first meeting at the Swiss Cottage Community Centr...

Albasain

•11 years ago

2 Replies

May Awareness

Good Morning to you all To mark the Vasculitis awareness month we have a special offer in our shop. It consists of 1 pack of post its...

Good Morning to you all To mark the Vasculitis awareness month we have a spec...

LynneJ

Vasculitis UK•11 years ago

5 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for May 2013

Help for contacting media to tell your story during Vasculitis Awareness Month

Anyone else hiding from the sun?

New page on the V-UK Website - Newsletter & Magazine articles

A week today is the Vasculitis UK AGM

Benefits

Vasculitis and gall bladders

Good news about the shop

Enfield family spreads word about son's rare condition 'They were preparing us for the worst'

"The spoon theory" - a must read!

Local radio station

nagative vasclitis

What does remission mean to you?

Painfull knees and ankes, can hardly walk, can you take painkillers?

May Awareness again

Fundraising for V-UK at the Manor Hospital, Walsall

Route Maps for Vasculitis being Distributed to Consultants and Doctors in Ireland

Sore gums

Walk the Worcestershire Way: Walkers Update and Event Detail

The latest poll on Vasculitis sufferers feet, fascinated me especially where it mentions burning feet.

West Country Fundraiser

Yorkshire Post

The London Vasculitis Support Group-First Meet-Sunday 26th May 2013

May Awareness

Search posts

Pinned Posts

Latest poll

If you have had covid and contacted a medical professional/hospital what medication/treatments were you offered?

Topics

Archive