Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,815 members • 6,819 posts

All posts for May 2013

Bank Holiday Weekend

If you have not made arrangements for the for the Bank holiday weekend and you do not plan to pop to the Cooper Hill Chesse Rolling then look no further than...

If you have not made arrangements for the for the Bank holiday weekend and you d...

Jann

•11 years ago

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What types of doctors best diagnose vasculitis & any underlying causes?

A biopsy recently revealed that the issues I've been having for the past few years are linked to leukocytoclastic vasculitis. I am seeking out a rheumatologist...

A biopsy recently revealed that the issues I've been having for the past few yea...

Ajanowiak

•11 years ago

6 Replies

"mystery diagnosis" HSP

an episode of "Mystery Diagnosis" entitled "rash decision" was on last night featured hsp vasculitis. sandra.

an episode of "Mystery Diagnosis" entitled "rash decision" was on last night fea...

hamble99b

Volunteer•11 years ago

10 Replies

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Kilimanjaro

The five explorers will be leaving at the end of this month to start the trek to climb Kilimanjaro. So while some of us enjoying our Bank holiday weekend the...

The five explorers will be leaving at the end of this month to start the trek to...

Jann

•11 years ago

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Lots of test !,,

Hi , finally can sit and let you know how we got on ( have been in local hospital since Tuesday with other normally healthy daughter with suspected appendix -...

Hi , finally can sit and let you know how we got on ( have been in local hospita...

Motherof4

•11 years ago

7 Replies

Vasculitis UK are now contributing to the funding for two new research projects.

A student elective bursary for a research study for Takayasu Arteritis and a drug trial for Polyarteritis Nodosa in Children. There is more detail about these...

A student elective bursary for a research study for Takayasu Arteritis and a dru...

John_Mills

Volunteer•11 years ago

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I am due to start Rituximab soon, infusion to be given over 4.25 hours, not 6, as I've seen on this site. Is this an important difference?

EbonyWillow

•11 years ago

10 Replies

Race for Life in York- June 2

In 2012 Julie spent 22 week in hospital having been diagnosed with Vasculitis. This June Julie plans to finish the Race for Life. Read Julie's story....

In 2012 Julie spent 22 week in hospital having been diagnosed with Vasculitis. T...

Jann

•11 years ago

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dwp guides on vasculitis

I hope this link works. they don't list GPA/WG it's under "other" http://...

hamble99b

Volunteer•11 years ago

1 Reply

Reducing Prednisolone

When I started on Pred in January I was put on 60mgs a day; this was due to losing 60% of my vision in my left eye. In February this was reduced to 40mgs a...

When I started on Pred in January I was put on 60mgs a day; this was due to losi...

Sima1952

•11 years ago

14 Replies

Problems with travel insurance

I was diagnosed 5 months ago with WG and have responded well to treatment. However I'm going on holiday next week and have just been looking into travel...

I was diagnosed 5 months ago with WG and have responded well to treatment. Howev...

Cmd83

•11 years ago

10 Replies

Kira is 9 years old, she has Vasculitis (HSP) and she is running in the Great Manchester Run this weekend with members of her family.

Kira is running the Great Manchester Run for Vasculitis UK because she would like to raise awareness of Vasculitis UK. Kira will be supported by her...

Kira is running the Great Manchester Run for Vasculitis UK because she would lik...

John_Mills

Volunteer•11 years ago

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VASCULITIS UK FUNDRAISER - TEIGNMOUTH, DEVON Saturday 25th May

This Saturday - 25th May A gentle reminder if you live within travelling distance of Teignmouth that on Saturday DevonLottie and her friends will be raising...

This Saturday - 25th May A gentle reminder if you live within travelling dist...

PatriciaAnn

•11 years ago

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wg,kidney involvement and steroids

anyone been able to get off long term steroid use,when they have kidney involvement been on the 7.5 mg dose for over a year now,but no sign of being weaned...

anyone been able to get off long term steroid use,when they have kidney involvem...

quinnster

•11 years ago

12 Replies

Great Manchester Run

Great Manchester run is a Family event for Kira Conroy. Kira will be supported by her sister, Step Dad and her Grandparents Bernie and Phil who will be doing...

Great Manchester run is a Family event for Kira Conroy. Kira will be supported b...

Jann

•11 years ago

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The London Vasculitis Support Group Meeting, Sunday May 26th 2013

Hi All, Seven days to launch! If you are thinking of attending the London Vasculitis Support Group meeting could you please let Dave know so...

Hi All, Seven days to launch! If you are thinking of attending th...

Albasain

•11 years ago

2 Replies

Devon Fundraiser - Saturday 25 May, Teignmouth

Hi, We'll be having a stall at the Volunteering in Health Funday on the Den in Teignmouth next Saturday 25th May 10.00 - 3.00 to raise funds for Vasculitis...

Hi, We'll be having a stall at the Volunteering in Health Funday on the Den in ...

DevonLottie

•11 years ago

4 Replies

Is the diagnosis of systemic vasculitis just a prelude to the real name of the illness?

02061949

•11 years ago

7 Replies

Manx Telecom Parish Walk

Most of us know the Isle of Man because of the Isle of Man Tourist Trophy race, colloquially known as "The TT", one of the international road racing event for...

Most of us know the Isle of Man because of the Isle of Man Tourist Trophy race, ...

Jann

•11 years ago

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Date for your diary - Vasculitis UK Fundraising Halloween Fancy Dress Party 26th October - St Helens

Saturday 26th October 2013 Want an evening that has it all - Great music, great fun, great prizes and best of all great company? Then the Halloween party on...

Saturday 26th October 2013 Want an evening that has it all - Great music, gre...

John_Mills

Volunteer•11 years ago

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I am an adult and I have had vasculitis HSP in the past a couple of times since 2007.

I am now experiencing excruciating burning pains in the muscles around my shoulder and legs. Is it related?

I am now experiencing excruciating burning pains in the muscles around my should...

Phylis

•11 years ago

4 Replies

I need advice for my seven year old daughter , we are off to Gt Ormand st hospital this Monday as local hospital think vasculitis

She has been through so many tests already , she has rashes that pop up any where ,her knee was a purple ballon the other day , and then she could nt walk...

She has been through so many tests already , she has rashes that pop up any wher...

Motherof4

•11 years ago

10 Replies

walk the Worcestershire way

Been out today researching marshal and rest stops, as well as the general geography of the walk. Bloody hell, some parts are a tad steep. If that doesn't put...

Been out today researching marshal and rest stops, as well as the general geogra...

Wellsie

•11 years ago

4 Replies

Innov8 Conferences are supporting Vasculitis UK for Vasculitis Awareness Month May 2013.

In 2007, Kira the Daughter of innov8's owners – Emma and James Caldwell was diagnosed with Henoch–Schönlein Purpura, a very rare form of Vasculitis. In the...

In 2007, Kira the Daughter of innov8's owners – Emma and James Caldwell was diag...

John_Mills

Volunteer•11 years ago

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Lake District Walk - CANCELLED

Hi Everyone, As announced last weekend at the AGM, unfortunately Jane Tomlinson's (the organisers of the Lake District Walking Festival) have had to cancel...

Hi Everyone, As announced last weekend at the AGM, unfortunately Jane Tomlins...

RichardE

Volunteer•11 years ago

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18 Months on & Still standing....Just!

Hi, I am new to this but thought I would share my experiences of the last 18 months which may make interesting reading...or not! I am a 37 years old &...

Hi, I am new to this but thought I would share my experiences of the last 18 mon...

AMJM2002

•11 years ago

3 Replies

Has anyone had a pulmonary/ hypertension test.

nannie

•11 years ago

4 Replies

My latest news update

Clinic visit today. Results of MRI scan of hips available, but report on Right hip only! Dr will try to get report on Left hip, which is the painful one....

Clinic visit today. Results of MRI scan of hips available, but report on Right h...

suffolkgirl

•11 years ago

1 Reply

WG and shingles

I have WG and this week developed a nasty attack of shingles - OUCH! Never knew it could be sooooooo painful! I read that shingles can be more serious and...

I have WG and this week developed a nasty attack of shingles - OUCH! Never knew...

Keymer71

•11 years ago

9 Replies

My daughter has systemic vasculitis mainly in her legs. One of her toes is going black and she is getting pressure sores on her heels. HELP

02061949

•11 years ago

23 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for May 2013

Bank Holiday Weekend

What types of doctors best diagnose vasculitis & any underlying causes?

"mystery diagnosis" HSP

Kilimanjaro

Lots of test !,,

Vasculitis UK are now contributing to the funding for two new research projects.

I am due to start Rituximab soon, infusion to be given over 4.25 hours, not 6, as I've seen on this site. Is this an important difference?

Race for Life in York- June 2

dwp guides on vasculitis

Reducing Prednisolone

Problems with travel insurance

Kira is 9 years old, she has Vasculitis (HSP) and she is running in the Great Manchester Run this weekend with members of her family.

VASCULITIS UK FUNDRAISER - TEIGNMOUTH, DEVON Saturday 25th May

wg,kidney involvement and steroids

Great Manchester Run

The London Vasculitis Support Group Meeting, Sunday May 26th 2013

Devon Fundraiser - Saturday 25 May, Teignmouth

Is the diagnosis of systemic vasculitis just a prelude to the real name of the illness?

Manx Telecom Parish Walk

Date for your diary - Vasculitis UK Fundraising Halloween Fancy Dress Party 26th October - St Helens

I am an adult and I have had vasculitis HSP in the past a couple of times since 2007.

I need advice for my seven year old daughter , we are off to Gt Ormand st hospital this Monday as local hospital think vasculitis

walk the Worcestershire way

Innov8 Conferences are supporting Vasculitis UK for Vasculitis Awareness Month May 2013.

Lake District Walk - CANCELLED

18 Months on & Still standing....Just!

Has anyone had a pulmonary/ hypertension test.

My latest news update

WG and shingles

My daughter has systemic vasculitis mainly in her legs. One of her toes is going black and she is getting pressure sores on her heels. HELP

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