Posts - Vasculitis UK | HealthUnlocked

this is from another site and posted wih permission, sandra. "copy and pasted this from the facebook group ATOS miracles Some one cares, someone wants...

Volunteer•11 years ago

1 Reply

MP's support.

this is from another site and posted wih permission, sandra. "copy and paste...

Volunteer•11 years ago

Hi Has anyone with WG any knowledge of raised creatinine levels? I have been feeling unwell lately, bloods are all normal, but creatinine levels are...

Creatinine Levels

Hi Has anyone with WG any knowledge of raised creatinine levels? I have been ...

Hidden

•11 years ago

As seen in previous blog, I filled the form in adding CSS at bottom of form for free prescription and received my free card today, it took about Two weeks,...

Want to take advantage of all our features? Just log in!

Prescription Excemption Card

As seen in previous blog, I filled the form in adding CSS at bottom of form for ...

alybill

•11 years ago

8 Replies

Only 6 working days until Christmas Day – don’t forget any repeat prescriptions you need over the festive period....

Happy Christmas ... :-)

Volunteer•11 years ago

I am sending out a gift To you and all my friends. Use it all you want, It never, ever, ends. I've stored it on a cloud, That's not so far away. You...

my gift to you

I am sending out a gift To you and all my friends. Use it all you want, It ne...

Volunteer•11 years ago

Rituximab - I may be prescribed this as Methotrexate does not seem as effective as previously. Any info/opinions?

EbonyWillow

•11 years ago

I received this petition by email this morning so I thought I would share it... Susan...

Keep Disability Living Allowance Campaign 2012

I received this petition by email this morning so I thought I would share it... ...

I've started using my own scooter while out. I've decided that it's a positive step as - I can be out for a bit longer; I can get further; the pain is...

Volunteer•11 years ago

Be the first to reply

my scooter

I've started using my own scooter while out. I've decided that it's a positive s...

Volunteer•11 years ago

Feeling a bit low,I dialled my brother's number and a jolly person wished me season's greetings. not recognising the voice I said "Sorry,I think I've dialled...

passing strangers

Feeling a bit low,I dialled my brother's number and a jolly person wished me sea...

We are trying to build a picture up of all the hospitals in the UK who treat and manage patients who have Vasculitis... please complete the survey....

Volunteer•11 years ago

2 Replies

If you have not completed the Vuk/HU Hospital Survey please could you take a moment and tell us about your hospital ....

We are trying to build a picture up of all the hospitals in the UK who treat and...

Volunteer•11 years ago

19 Replies

Does anyone have problems with obtaining referrals from your GP to a vasculitis consultant/hospital of your choice..or have you in the past?

http://www.bbc.co.uk/news/business-20709623 Disability Living Allowance change timetable extended

Volunteer•11 years ago

17 Replies

Disability Living Allowance change timetable extended

http://www.bbc.co.uk/news/business-20709623 Disability Living Allowance chang...

I have suffered from HUVS for over 5 years with attacks generally occurring every 3 months - generally severe or very severe. I have now been treated for about...

Volunteer•11 years ago

2 Replies

Any HUVS suffers with experience of being treated with C1 inhibitor - e.g. Cetor, Berinert Ruconest?

I have suffered from HUVS for over 5 years with attacks generally occurring ever...

Rofa

•11 years ago

Does anyone else with WG have fibrosis. I seem to have got a lot worse over the last 6 months and all the hospital want to do is increase my steroids. My...

the other day i saw something on teletex about a large grant to explore the genome of cancer and rare disieses will vasculitis be included??

gsmith

•11 years ago

1 Reply

Fibrosis

Does anyone else with WG have fibrosis. I seem to have got a lot worse over the ...

nannie

•11 years ago

Please click on this link to see our special animated Christmas tree and read the greetings from the Vasculitis UK Trustees...

Christmas Greetings from the Trustees of Vasculitis UK

Please click on this link to see our special animated Christmas tree and read th...

PatriciaAnn

•11 years ago

Hi, i had a small part on the left of my left thigh/knee affected by Mononeuritis Multiplex (i have WG and this is secondary to it) and it gave me no pain...

Mononeuritis Multiplex worsens after operation

Hi, i had a small part on the left of my left thigh/knee affected by Mononeurit...

Ulysses31

•11 years ago

Vasculitis UK now has 16 runners taking part in the British London 10K Run. The personal aims of each runner is to complete the course in a good time, have...

British 10k London Run

Vasculitis UK now has 16 runners taking part in the British London 10K Run. The ...

A hint I was given - always keep a copy of your DLA claim and compare what you wrote on the previous claim. We have just been successful with the new claim.

Volunteer•11 years ago

1 Reply

DLA

A hint I was given - always keep a copy of your DLA claim and compare what you w...

Patriciaw

•11 years ago

http://www.number10.gov.uk/news/dna-tests-to-fight-cancer/

An interesting article to read from number 10

Volunteer•11 years ago

I attended what will hopefully be my penultimate therapy session today. Bloods and urine are all good (again), so just the normal infusion, or so I thought....

Chemo Cycle 9:

I attended what will hopefully be my penultimate therapy session today. Bloods ...

Wellsie

•11 years ago

The West Country group will be holding their next lunch at The Mill on the Exe Bonhay Road, Exeter, Devon, EX4 3AB on Tuesday 22nd January 2013...

West Country Support Group Lunch

The West Country group will be holding their next lunch at The Mill on the Exe...

DevonLottie

•11 years ago

Be the first to reply

Dla??

I had been claiming DLA for the last few years i had to re-claim before my award ran out and i re-claimed filled out the form as best as i could and now they...

I had been claiming DLA for the last few years i had to re-claim before my award...

jacksmiff

•11 years ago

I have been looked after by Dr. S Gibson, Renal Consultant at Royal Preston Hospital, Lancashire for 5 years following my own diagnosis with vasculitis (MPA)...

Dr . S . Gibson ,Renal Consultant , Retiring .

I have been looked after by Dr. S Gibson, Renal Consultant at Royal Preston Hos...

Maggie20

•11 years ago

Does anyone get a pain, tightness in their neck, just at their left collar bone? It feels like a vein is twisted? It lasted all yesterday?

mg15

•11 years ago

my father died october 11 1981 and was only 33. he kept going the doctors and the doctors said that it was only flu, then finaly 3 weeks later he was admited...

wegeners granulomatosis

my father died october 11 1981 and was only 33. he kept going the doctors and th...

jephcote2202

•11 years ago

Hi, I was diagnosed in May 2009 with WG, went through the normal Cyclophosphamide and prednisolone treatment and have been fortunate to be able to return to a...

Anyone with WG in drug free remission?

Hi, I was diagnosed in May 2009 with WG, went through the normal Cyclophosphamid...

johnyenglish

•11 years ago

10 Replies

Was anyone with ANCA Associated Vasculitis diagnosed before the age of 18 years old?