Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,780 members • 6,756 posts

All posts for December 2012

Is anyone taking Myfenax as I've just been prescribed it today

prudence

•11 years ago

10 Replies

Updated Route Map for Vasculitis November 2012 pdf version

http://www.vasculitis.org.uk/about/routemap Hard copy version available in 7 days time... :-)

http://www.vasculitis.org.uk/about/routemap Hard copy version available in 7 ...

John_Mills

Volunteer•11 years ago

5 Replies

Hip pain and shaking limbs!

Not sure if this is related to my vasculitis. My right leg has a shake when I sit down, my foot goes numb off and on too. Then I woke up with a pain in my hip....

Not sure if this is related to my vasculitis. My right leg has a shake when I si...

CathT

•11 years ago

8 Replies

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Vasculitis UK fund the new UK Vasculitis Registry

Vasculitis UK fund the new Vasculitis Registry ... http://www.vasculitis.org.uk/news/v-uk-funds-vasculitis-registry

Vasculitis UK fund the new Vasculitis Registry ... http://www.vasculi...

John_Mills

Volunteer•11 years ago

2 Replies

John Mills Chairman of Vasculitis UK begins his other job tomorrow morning at 11.30am .. :-)

Thought I would share this... :-) first of a few engagements.. Happy Christmas !!!!!! Santa's little helper :-) x.

Thought I would share this... :-) first of a few engagements.. Happy Christ...

John_Mills

Volunteer•11 years ago

11 Replies

What's the best way to cope with having a suppressed immune system during winter?

I have CSS and am on 200mg azathioprine a day and 6mg prednisolone. It seems that just a common cold has more serious consequences resulting in me having to...

I have CSS and am on 200mg azathioprine a day and 6mg prednisolone. It seems tha...

Katie18

•11 years ago

13 Replies

hygiene

I stayed in a hotel last week where meals were self-service on a buffet bar. One lady used the serving tools at each section, she used a serving spoon to put...

I stayed in a hotel last week where meals were self-service on a buffet bar. On...

hamble99b

Volunteer•11 years ago

5 Replies

12 Months Nearing a Clearing In the Mist? Not sure...

Hi - this is Jay, I'm 41 and live on the Suffolk / Essex Borders. I have been unwell for 12 months with an undiagnosed liver disease. Last year I became unwell...

Hi - this is Jay, I'm 41 and live on the Suffolk / Essex Borders. I have been un...

ferris

•11 years ago

1 Reply

Another interesting BBC programme to listen to Radio 4 today programme this morning..

Another interesting story to listen too... as I know everyone with Vasculitis have very different stories to tell about nursing care for Vasculitis... good or...

Another interesting story to listen too... as I know everyone with Vasculitis ha...

John_Mills

Volunteer•11 years ago

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Are there any Suffolk/Essex Behcets sufferers who have 5 minutes spare?

I'm struggling to find a diagnosis to my liver condition - the newest suggestion is Behcets and something else\\?

I'm struggling to find a diagnosis to my liver condition - the newest suggestion...

ferris

•11 years ago

4 Replies

Interesting article this morning on the BBC news regarding Legal Aid

http://www.bbc.co.uk/news/uk-politics-20588876

John_Mills

Volunteer•11 years ago

2 Replies

advice on dla

a friend of mine who recently renewd her claim sent all her paper work with the renewal form only to be told they not recieved it and say it must of been lost...

a friend of mine who recently renewd her claim sent all her paper work with the ...

tracey65

•11 years ago

9 Replies

any one with wg got hypoxia?

I have had wg for 5and a half years drug maintained remission have been unwell for several months have had some breathlessness prior when over doing it. But...

I have had wg for 5and a half years drug maintained remission have been unwell f...

kath12341

•11 years ago

2 Replies

Azathioprine

Is anyone else having problems getting Aza from the chemist (part of a chain). My one next to the dr seems totally unable to get it, they say there "are...

Is anyone else having problems getting Aza from the chemist (part of a chain). M...

metalback

•11 years ago

5 Replies

Regular checks on doctors begins today

"This is an important day for doctors and patients. We are confident that over time revalidation will make a significant contribution to the quality of care...

"This is an important day for doctors and patients. We are confident that over t...

John_Mills

Volunteer•11 years ago

2 Replies

December 2012 Vasculitis UK e-newsletter Thought I would share mine...

http://dmtrk.com/QLW-12QJR-803MZBJ67A/cr.aspx If you would like to be on the future mailing list please contact Pat...

http://dmtrk.com/QLW-12QJR-803MZBJ67A/cr.aspx If you would like to be on the ...

John_Mills

Volunteer•11 years ago

1 Reply

December 2012 Vasculitis UK e-news letter

http://www.vasculitis.org.uk/news/december-e-news-2012 The Vasculitis UK December e-newsletter was circulated to all members of Vuk just after midnight...

http://www.vasculitis.org.uk/news/december-e-news-2012 The Vasculitis UK Dece...

John_Mills

Volunteer•11 years ago

1 Reply

Centre treating rare Behçet’s Disease opens at Royal London Hospital Friday November 30th

I wish the government would include all types of Vasculitis in these Centre's for treating Behcets they keep opening..... cannot understand why only patients...

I wish the government would include all types of Vasculitis in these Centre's fo...

John_Mills

Volunteer•11 years ago

1 Reply

Advice please

I think I've been fairly lucky and since being on these meds I've not suffered colds or sore throats etc., I had Rituixmab end of October and on the usual...

I think I've been fairly lucky and since being on these meds I've not suffered c...

annie330

•11 years ago

6 Replies

nice & meds for rare diseases

just watching BBC Parliament channel, showing a discussion with N.I.C.E. laura weir chair, patients involved in nice. barbara keeley labour mp for worsley...

just watching BBC Parliament channel, showing a discussion with N.I.C.E. laur...

hamble99b

Volunteer•11 years ago

4 Replies

Document Published by the Department of Health yesterday regarding NICE

http://www.dh.gov.uk/health/2012/11/nice-october-2012/ Vasculitis UK will be writing a report and presenting evidence to NICE for the Topic regarding...

http://www.dh.gov.uk/health/2012/11/nice-october-2012/ Vasculitis UK will...

John_Mills

Volunteer•11 years ago

2 Replies

Rash after cyclophosphamide infusion?

Last Tuesday I had my second cyclophosphamide infusion. Two weeks earlier I'd found the first one straightforward, with no nausea and just one wonky day a...

Last Tuesday I had my second cyclophosphamide infusion. Two weeks earlier I'd ...

BronteM

•11 years ago

5 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for December 2012

Is anyone taking Myfenax as I've just been prescribed it today

Updated Route Map for Vasculitis November 2012 pdf version

Hip pain and shaking limbs!

Vasculitis UK fund the new UK Vasculitis Registry

John Mills Chairman of Vasculitis UK begins his other job tomorrow morning at 11.30am .. :-)

What's the best way to cope with having a suppressed immune system during winter?

hygiene

12 Months Nearing a Clearing In the Mist? Not sure...

Another interesting BBC programme to listen to Radio 4 today programme this morning..

Are there any Suffolk/Essex Behcets sufferers who have 5 minutes spare?

Interesting article this morning on the BBC news regarding Legal Aid

advice on dla

any one with wg got hypoxia?

Azathioprine

Regular checks on doctors begins today

December 2012 Vasculitis UK e-newsletter Thought I would share mine...

December 2012 Vasculitis UK e-news letter

Centre treating rare Behçet’s Disease opens at Royal London Hospital Friday November 30th

Advice please

nice & meds for rare diseases

Document Published by the Department of Health yesterday regarding NICE

Rash after cyclophosphamide infusion?

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