Was anyone with ANCA Associated Vasculitis d... - Vasculitis UK

Vasculitis UK

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Was anyone with ANCA Associated Vasculitis diagnosed before the age of 18 years old?

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John_MillsVolunteer
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tamidi profile image
tamidi

My daughter is 11 years old and she was dagnosed ANCA associated vasculitis

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John_MillsVolunteer in reply to tamidi

Please would you send us a private message..tamidi

Susan and John

nagesh profile image
nagesh

my son diagnosed with WG anca associated vasculitis at his 14 years now he is 18 years,

i live in india

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John_MillsVolunteer in reply to nagesh

Could you write John an email please john.mills@btinternet.com and thank you for getting in touch

take care

Susan

bakermichelle1982 profile image
bakermichelle1982

I was just 18 when diagnosed Susan but I had been quite ill with WG long before. So they are guessing I was 16 when my ANCA related vasculitis came about... I was just unfortunate to be sick with something that no one knew to look for:(

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John_MillsVolunteer in reply to bakermichelle1982

Thank you for this Michelle.. hope you are ok? xx

bakermichelle1982 profile image
bakermichelle1982 in reply to John_Mills

I am doing well!! Few bumps here and there. But nothing serious. Other wise I'm a very healthy person:) I hope all is well with you and John:) xx

John_Mills profile image
John_MillsVolunteer

As soon as we know what to do next we will be in touch..it maybe after Christmas now... but as soon as we know we will share the information...

all the best and thank you

Susan

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