I just wanted to say a quick hello. Hope things are going OK.
Im having blood tests for scleroderma and APS. My symptoms include swollen purple fingers, purple red legs (levido reticularis maybe), hearing loss and severe tinnitus, blurred double vision, muscle spasms, pins and needles etc. With depression and anxiety having followed in the wake of these. I also lost my job and my home and my wife left me last year. So feeling a bit sorry for myself. But I know that there are others dealing with more and staying strong and Im trying to take hope and strength from their courage. Ive never been a religious person. This was maybe one reason why my wife left me. That and me being a bit of a pain soemtimes! But I have been searching for hope wherever I can find it. Anyways, I came across this link with two women with scleroderma singing Hilsong Oceans and found it pretty inspiring. I wish I could have their positive attitude. But tbh Im just exhausted and scared atm.
Would be great to hear how people coped with drawn out diagnosis process and the fears that can follow from reading too much on the internet.