Log in
Scleroderma & Raynaud's UK (SRUK)
7,380 members3,477 posts


I am 62 but have been feeling much older. I have multiple ailment that are pretty intolerable that range from limited scleroderma, Raynaud's disease, rheumatoid arthritis, gerd and many stomach issues. These are the worst of my problems. I was seeing a gastroenterologist and was sent to a surgeon who removed part of my lower colon. This didn't help my problem for long and I got it back. I have had fecal intolerance for many years and have been controlling it but it has gotten the best of me now. I was told I will need to have a colostomy bag soon since another operation won't help and my soft tissue there is bad. I've been trying to wrap my head around that and need to get it done so I can go on with my life👍I've always tried to stay isotope throughout all the many issues that have come up and all the surgeries I've had so far but this one is a hard one! I'd appreciate any input to this surgery and about what will all take place with the colostomy bag and all . If anyone has any info about it I'd be much appreciative! Thanks Cindy

2 Replies

Good morning Cindy, so sorry to hear about all your problems. I am nearly 70 and have suffered with all the usual scleroderma and Raynauds ailments over the last thirty years. Like you, the gastroenterologist also told me that I can not have any more surgery and a colostomy was now the only option. However, I had read on line, through this forum, that some people were using an anal irrigation system called Peristeen or Qfora so I requested to be put on this . I have now been using it since February and it has totally changed my life. I use it once in the morning and then , for the first time in years, can forget about my bowels for the rest of the day. So maybe ask your consultant if this is something that would be suitable for you.

Regarding the almonds I have been having almond milk in a new drink I found called Turmerlicious (a blend of turmeric, ginger, cinnamon and coconut oil) last think at night and I have found I have slept so much better with no reflux.

Wishing you all the best and hope things get better for you. Xxx


Thank you both for the almond info; I had not heard of this. Will try both and see what happens!


You may also like...