Hoping someone can help me.
I have a diagnosis of limited cutaneous systemic sclerosis, which was diagnosed about 3 years ago have been relatively ok until recently, when I started to develop problems with my oesophagus. I'm still waiting for the results of my barium swallow, which apparently can't be accessed currently because of the cyber attack.
I've also had some quite significant skin tightening on my neck, which has appeared quite quickly, mainly over the past week. I've never seen anyone with scleroderma though, and so I don't know if this a normal development of scleroderma or not. I've tried googling for images, but can't see anything that looks like my neck. It is the same colour as the rest of my skin, and is normal when I'm looking straight forward, but is really noticeable when I lift my head up, or look to either side. It then looks a bit like someone who has had a severe burn, and really hard (to the point that I can actually knock on it!). It's also sore, and is limiting my range of movement in my neck. I have a sensation of being strangled, and I think it's just because the skin is so tight.
I've tried ringing the rheumatologist, but the secretary said that she couldn't do anything because the computers are still down. I've therefore made a GP appointment for tomorrow, although I doubt they'll have any idea what it is!
Has anyone else experienced anything similar? I'm wondering whether this means that I have now developed diffuse cutaneous systemic sclerosis, but am quite frightened by the speed that this seems to be happening. I thought these things would take years to develop.
Any ideas would be very welcome! x