Scleroderma & Raynaud's UK (SRUK)


Hi everyone, I am new to this site but can see from other comments how friendly you all are. I was diagnosed in 2008, after having my daughter, with scleroderma overlap rheumatoid arthritis, myositis and raynaud's. It seems to be under control at the moment but my recent lung function test has come back with low transfer figures which is to do with my oxygen intake and I have thought it could possibly be the start of pulmonary hypertension. I am normally a positive person and do just get on with things but I am a little worried at the moment which is stupid as it hasn't been diagnosed and may all be ok after further tests. My family are very supportive but thought it would be good to speak to people who truly understand how I feel and hopefully I can support others on here too.

2 Replies

My lungs are regularly tested too. It's good but don't diagnose yourself ask an expert, your consultant, your GP or your specialist nurse.

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Zoe1973, continue to maintain a positive attitude. My medical challenges began 3 years before I was diagnosed and my first related hospital stay lasted 17 days; I've had more hospital stays and procedures since then - and I was diagnosed in 2008 with Systemic Scleroderma with Pulmonary Hypertension and Raynauds, and had already started with Congestive Heart Failure during the first hospital stay. In fact, I've been in a coma and on life support after my lung surgery. My faith is strong, I have an excellent support system, I am regimented and consistent with my health care and try to stay in a happy place and be around cheerful/encouraging/loving Believers in God. A positive attitude, staying involved with your conditions, and yes, supporting others and embracing the blessings we have, believing in blessings ahead, can all make for better quality for our lives and a happier life. I look forward to my inspirational time this morning and my Yoga workout. Hang in there and no matter what these diagnosis may be, keep pushing forwarding: Living, Loving and Laughing. Life is too short regardless to be brooding, and keep in mind that they are so many people that are grateful, yet many of them have much more serious health issues and challenges. God bless your day and week ahead, Zoe1973. Blessings to You.


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