Systemic Scleroderma aka Systemic Sclerosis

[Marinav]

I was diagnosed this past June. I've had emotional ups and downs and I'm learning to cope with changes... very mental disease... has anyone has IVIG TReatment? What was the outcome? How long in treatment?

[marilynmcl]

Hi Marinav....not had IVIG ..but cyclophosphomide infusions and now on Mycophenolate plus other meds....I would say that S.sc. is only a mental disease if you let it be so. Try to think positively...I have read about IVIG and it appears to be an effective treatment. Good luck going forward and better health for you.

[Marinav in reply to marilynmcl]

Thank you marilynmcl... I am undergoing my fifth month of five consecutive days each month of IVIG and it appears to be slowly making changes. Blood pressure is so much better.

[marilynmcl in reply to Marinav]

Happy to hear this Marinav...slowly,slowly....just,as I wrote before, being positive will make a big difference to your treatments. x