Has anyone had a sacral neuro stimulator (SNS) implant for incontinence in scleroderma and if so was it successful?

[AHM42]

I would be interested to know how other people cope with this problem and has any treatment been helpful?

[NJOS]

I had and sns implant a couple of years ago and have found that it helped a lot. The temporary implant helped straight away but the permanent implant took a while to get right. I still have problems but they don't seem to be as bad as they were. I hope that this helps but please feel free to ask me more questions.

[AHM42]

Thanks for your answer. We are trying to conduct a questionnaire through the RSA newsletters to find out if SNS really helps people with scleroderma. I had my temporary one fitted in February 2011 with reasonably good results and the permanent implant a month later in March. I realise that there are better results with the temporary one but finding the situation as it is now, really frustrating. I have been reprogrammed 6 times but all to no effect. How long did yours take to start showing benefit. Did you ever feel it wasn't going to work? Is it possible to ask what programme you are on now and how many times did you have to be reprogrammed to get it to work? I am assuming that you have scleroderma.

Many thanks