education: i have been asked by my GP... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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vaughan profile image
4 Replies

i have been asked by my GP in preston if i would go and meet some medical students and talk about my condition to make them aware of this condition and the possability to spot the desease at the earliest possible symtems

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vaughan profile image
vaughan
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4 Replies
uknlv profile image
uknlv

I do that as well vaughan, it is very rewarding, for me at least. I think the more we can educate the up and coming doctors on our disease the better it will be. So many times it takes so long for a diagnosis and proper treatment simply because the doctors you see do not know the signs of Sclerosis/Scleroderma. It took 5 years and an trip to the Rheumatologist because I thought I had Arthritis to finally get a proper diagnosis of Limited Systemic Sclerosis/Scleroderma and the long list of other ailments! I say go for it if you are comfortable talking to people as it can only help.

Anteater profile image
Anteater

Yes I agree with UKNLV - I have also done this in the past, we need to have as many health professionals as possible educated in our condition. Good luck Vaughan.

Emma2 profile image
Emma2

This is a really good opportunity to explain what it is like to live and cope with your condition - it could really help people who are yet to be diagnosed too. Go for it!

Hope it went well, vaughan. The more medical professionals that know about it, the better. Over the last 6 years, I've lost count of the number of medical students that have asked me questions. My mum gets annoyed with them, but I reassure her that it's for a wider good.

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