I'm an outspoken individual but I like to think I take other people's feelings into account. I only know one person who suffers the way I do and no one else really understands... therefore....
I think more of us should get together to discuss problems / solutions. And lets face it the only people that will understand fully are us... the sufferers. I know personally my symptoms are virtually disappearing as I get into my late teens but I think speaking to others really helps the 'mind over matter' aspect of the disease.
Therefore I propose a regular meet up...either online or in person of those people in a local area. I have 10 sufferers in my area on the directory part of the website that may be interested in meeting regularly providing dates meet everyones approval?
Why not do it sooner rather than later and see if people fancy meeting up and visiting the new exhibition by Jaume Plensa at Yorkshire Sculpture Park on Sunday 1st May? You don't have to like art to go as It really is a truly inspitational exhibition! The only charge is getting there and the £4 parking which is more than worth it.
Let me know if you fancy meeting up by sending a message via Health Unlocked, if i get more than 10 people I may be able to set up some group discounts in the way of food and parking.
All the best