Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

22,136 members•41,952 posts

All posts for April 2025

PMR return

I developed PMR in Sept of 2023. Started prednisone, 20 and at first had difficulty tapering until rheumy put me on Kevzara . Tapered slowly and took last dose...

I developed PMR in Sept of 2023. Started prednisone, 20 and at first had difficu...

GMA74

•3 hours ago

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Methotrexate vs Quality of Life

Hi A wee while ago I asked for feedback on whether to continue with MTX. https://healthunlocked.com/pmrgcauk/posts/151839175/methotrexate-or-not Many...

Hi A wee while ago I asked for feedback on whether to continue with MTX. http...

Sunburst001

•3 hours ago

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Feeling very dizzy

Hi I was diagnosed with PMR in November last year and find this group very helpful and reassuring to know you are out there. Everything has gone relatively...

Hi I was diagnosed with PMR in November last year and find this group very helpf...

Libellule64

•11 hours ago

11 Replies

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Carb confusion.

I'm interested in the issue with carbs but I have a question. I notice on my cheese wrapper that 100g of mature cheddar yields 0.1g carbs. So why does 100ml...

I'm interested in the issue with carbs but I have a question. I notice on my ch...

Groggrim

•12 hours ago

3 Replies

arthritis seems worse?

I am congratulating myself for finally coming off Pred 3 weeks ago after a very slow tapering… I started Pred neary 5 years ago.. However it may be my...

I am congratulating myself for finally coming off Pred 3 weeks ago after a very...

Loveopera

•13 hours ago

1 Reply

Struggling

Now down to 3.5 of pred after endocologist told me to come down 1 mg a month as my basal cortisol was over 500 and nothing bad would happen to me. Wrong I...

Now down to 3.5 of pred after endocologist told me to come down 1 mg a month as ...

Oscarsnan

•16 hours ago

8 Replies

Supplements to support adrenal function?

Kia ora Just wondering if anyone has successfully used any supplements to support their body while taking Prednisone? Or supplements to support adrenal...

Kia ora Just wondering if anyone has successfully used any supplements to suppo...

Sunburst001

•18 hours ago

5 Replies

Pred tapering

I was put on 25 mg Pred in A&E as I had muscle pains and couldn't move and also excruciating head pain which they thought was GCA but turned out to be sinus...

I was put on 25 mg Pred in A&E as I had muscle pains and couldn't move and also...

MargieRoy

•18 hours ago

1 Reply

Nothing is straightforward with PMR!

I posted about a month ago that my PMR had returned after a long layoff. All the usual symptoms but mainly in the hips and upper legs. My GP was less sure. I...

I posted about a month ago that my PMR had returned after a long layoff. All the...

Mikeysaab

•19 hours ago

4 Replies

New to PMR

I have been developing PMR symptoms over the last 3-4 months-stiff and painful shoulders, neck,hips and upper arms- and have been taking ibupfofen to manage...

I have been developing PMR symptoms over the last 3-4 months-stiff and painful s...

Gingershot

•21 hours ago

11 Replies

no omeprazole ….

I have been on pred since January 24. Started on 15mg and took omeprazole for a few months until I read about the possible side affects. I stopped taking it...

I have been on pred since January 24. Started on 15mg and took omeprazole for a ...

Phoebenooby

•1 day ago

15 Replies

Advice please - Cortisol Stimulation Test Results

Hello All, After 6 moths on Medrol (48mg - 3.5mg I had symptoms of adrenal crisis) my rhuemy passed me on to my endocrinologist (had no more PMR pain). The...

Hello All, After 6 moths on Medrol (48mg - 3.5mg I had symptoms of adrenal cris...

StellaBulldog

•1 day ago

3 Replies

Prediabetes

I had my appointment with my endo this afternoon. My recent blood tests show me to be in the prediabetes range. My hba1c is 43. I am so glad that I have...

I had my appointment with my endo this afternoon. My recent blood tests show me...

Groggrim

•1 day ago

15 Replies

CT Scan results....

I had a scan done yesterday the focus of the scan was to see if there was any evidence of LVV to support a GCA diagnosis....the results were negative so we are...

I had a scan done yesterday the focus of the scan was to see if there was any ev...

spoof99

•1 day ago

7 Replies

PMR rearing its head or arthritis?

Hi Everyone! I’ve not posted for a while as was waiting to announce good news that PMR and steroids all gone - and I’d gone sailing! However …. Using 7-week...

Hi Everyone! I’ve not posted for a while as was waiting to announce good news t...

Hopingsail

•2 days ago

6 Replies

spinal Stenosis

My rheumatologist wasn’t sure if I had GCA, but thought I might since I wasnt responding to lower doses of prednisone. But it was negative with biopsy. I have...

My rheumatologist wasn’t sure if I had GCA, but thought I might since I wasnt re...

3dogsheidi

•2 days ago

8 Replies

Pancreatitis due to steroids

I have been on prednisolone for 9 years and have recently been hospitalised due to acute pancreatitis. They told me it was due to having the steroids for so...

I have been on prednisolone for 9 years and have recently been hospitalised due ...

Sorop

•2 days ago

2 Replies

Covid jab

I’m getting txts from the NHS saying that as I have a weakened immune system I should consider taking of a free jab to top up my reduced covid protection....

I’m getting txts from the NHS saying that as I have a weakened immune system I s...

Mervetheswerve

•2 days ago

25 Replies

No PMRpro this weekend!!!

Just so you know - I am totally incommunicado for the rest of the weekend until Monday evening. I am going to a wedding and our accommodation does not have...

Just so you know - I am totally incommunicado for the rest of the weekend until ...

PMRpro

Ambassador•2 days ago

48 Replies

post covid jab discomfort

Good morning, I had a spring covid jab yesterday. I don't have many side effects and the ones I have are mild, but I am feeling a return of the PMR discomfort...

Good morning, I had a spring covid jab yesterday. I don't have many side effect...

Groggrim

•2 days ago

19 Replies

Norfolk group (Norwich)

Hi. I’ve met up a couple of times at Notcutts and last time we arranged to meet there next Friday (11th) at 230pm. I will be there but hopefully not on my...

Hi. I’ve met up a couple of times at Notcutts and last time we arranged to meet ...

George40

•2 days ago

9 Replies

negative biopsy for GCA still suffering

one week ago I developed a left sided temporal headache pain with vision changes and jaw claudication. I’m in my 50s have a known history of auto immune...

one week ago I developed a left sided temporal headache pain with vision changes...

Newbiewithheadache

•2 days ago

15 Replies

steroid injection

HI sorry if I appear ignorant went to rheumatologist yesterday. I was told that I would likely need steroids long term I was prescribed a steroid injection and...

HI sorry if I appear ignorant went to rheumatologist yesterday. I was told that ...

Harry8388

•2 days ago

9 Replies

Some good news for a change

I've just led a Zoom discussion on low carb eating and in doing the research for it, it got me thinking Apart from the back pains, which I won’t bore you...

I've just led a Zoom discussion on low carb eating and in doing the research for...

tangocharlie

•3 days ago

99 Replies

Tocilizumab

Hello all, I have had PMR for just over 2 years. A week ago I saw the Rheumatologist when he confirmed I have GCA. He has asked me to consider going on...

Hello all, I have had PMR for just over 2 years. A week ago I saw the Rheumato...

mackymoo

•3 days ago

9 Replies

On antibiotics

I wasn't told by the GP to stop taking any of my medication while on a week of antibiotics. I take, amongst other medication, 5mg Prednisolone daily plus...

I wasn't told by the GP to stop taking any of my medication while on a week of a...

Oddmanout

•3 days ago

5 Replies

Locked out

Good morning, I was worried earlier because on my phone I have been locked out of my HU account. However I can log in on my laptop, phew, but I don't...

Good morning, I was worried earlier because on my phone I have been locked out o...

Groggrim

•3 days ago

5 Replies

PMR one step forward three back!

good morning - advice please if you may. Getting frustrated - for months since original diagnosis in September 2023 had been congratulating myself of...

good morning - advice please if you may. Getting frustrated - for months since ...

Sungolfer

•3 days ago

24 Replies

Accrete D3 stock UK alternatives

Having asked for a repeat prescription of Accrete D3 tablets, my GP’s pharmacist says it’s out of stock at both Boots and Superdrug and they have swapped out...

Having asked for a repeat prescription of Accrete D3 tablets, my GP’s pharmacist...

Rabbit090

•3 days ago

11 Replies

Yorkshire support group meeting in Leeds

Our next meeting will be on Wednesday 9th April from 12 to 2pm in the John Lewis store in Leeds. We meet in their "Community Hub" which is on the 4th floor,...

Our next meeting will be on Wednesday 9th April from 12 to 2pm in the John Lewis...

Rugger

•3 days ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2025

PMR return

Methotrexate vs Quality of Life

Feeling very dizzy

Carb confusion.

arthritis seems worse?

Struggling

Supplements to support adrenal function?

Pred tapering

Nothing is straightforward with PMR!

New to PMR

no omeprazole ….

Advice please - Cortisol Stimulation Test Results

Prediabetes

CT Scan results....

PMR rearing its head or arthritis?

spinal Stenosis

Pancreatitis due to steroids

Covid jab

No PMRpro this weekend!!!

post covid jab discomfort

Norfolk group (Norwich)

negative biopsy for GCA still suffering

steroid injection

Some good news for a change

Tocilizumab

On antibiotics

Locked out

PMR one step forward three back!

Accrete D3 stock UK alternatives

Yorkshire support group meeting in Leeds

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