Totally shocked.: My reumy s office just called me... - PMRGCAuk

PMRGCAuk

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Totally shocked.

Hunter134 profile image
9 Replies

My reumy s office just called me.Hes on holidays and was told to go to my family dr who knows nothing about pmr.I just remembered that when I first got pmr I had terrible sciatica which I have now.The secretary told me to up my prednisone to whatever I think I need.Really now what would the dose be?My dr had me doing physio first time I got pmr and I got so bad I couldn't get to the washroom.Any advice on this?

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Hunter134 profile image
Hunter134
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9 Replies
PMRpro profile image
PMRproAmbassador

Try our flare protocol - add 5mg to the dose you are at for up to 2 weeks, Then you can drop back to the dose above where you are now without tapering. If that works - then it shows the problem is inflammation. If it doesn't, it needs some proper diagnostics and a decent GP should be up to that. But come back here and tell us what happens - we'll put our thinking caps on.

However - your rheumy needs a reality check and proper cover for holidays.

Hunter134 profile image
Hunter134 in reply toPMRpro

I ve already upped my prednisone 10 days ago to 11 but it's not enough.Today I took 15.I do know sadly I will have to taper again.Thanks for the response.All my symptoms are typical of my first pmg beginning.

PMRpro profile image
PMRproAmbassador in reply toHunter134

It never pays to be too much in denial!

Hunter134 profile image
Hunter134 in reply toPMRpro

My pain is completely symmetrical.Its been coming on for awhile but I thought it was adrenaline deficit.

Koalajane profile image
Koalajane

you don’t say what dose you were on before you upped it so can you tell us that please.

Hunter134 profile image
Hunter134 in reply toKoalajane

I was on 6.5.since May but I had niggles then.Felt worse pain 7 days ago upped to ten.Later it was recommended I go to 11 mg.Been there for 4 days then all my symptoms from pmg came back overnight.

arvine profile image
arvine in reply toHunter134

You mean when you increased up to 11 mgs after 4 days you had more pain and original pmr symptons, which may I asked what were they and how long have you been on prednisone?

Hunter134 profile image
Hunter134 in reply toarvine

I ve had it 14 years ago.Went in a flare four years ago.Got to 6.5 mg from June then the last two weeks I started to hurt.Have sciatica now which I did the first time

Hunter134 profile image
Hunter134 in reply toKoalajane

Sorry I didn't say more.Iam just so frustrated.No help from my reumy.Left me stranded.

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