back on pred

[Harry8388]

I tried to do what GP and Rheumatologist

Instructed and reduced pred over 2 year period stopping at end of August and had a few niggles until I eventually was struggling to get upstairs I restarted pred yesterday I am already managing stairs much better

Thank goodness for this forum I really don’t think the so called medics have a clue

Thank you

[SheffieldJane]

So sorry for the disappointment. It is pointless suffering needlessly and scary when you don’t feel understood. X

[HeronNS]

Glad the pred is doing its job again! Managed to put myself into a similar position, although I'd been taking low dose of pred for several years and always had sensible support from doctor. You will get to genuine zero eventually, just not yet. 🍀

[Harry8388 in reply to HeronNS]

Thank you

[PMRpro Ambassador]

You would think they might learn when their 2 year concept fails - but many appear not to!

What have you restarted at?

[Harry8388 in reply to PMRpro]

7mg moving so much better have had a bit of indigestion since but movement is great and did not realise how bad I had got

[PMRpro Ambassador in reply to Harry8388]

That often happens when it gets worse slowly and you put it down to being older than pre-PMR and deconditioning. That's why we say you need to be aware - never worse at the end of a taper step than you were at the start of it.