Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,022 members • 39,679 posts

All posts for September 2024

Frusemide and pred

Hi all I'm still here... on 1mg but going for a renogram and they're gonna give me IV frusemide. The advisory letter that came with the appt letter, says to...

Hi all I'm still here... on 1mg but going for a renogram and they're gonna give ...

MDT1

•12 days ago

6 Replies

Anxiety when reducing Predisolon

I am coming down from 3mg to 2.5mg slowly over 7 weeks and have felt anxious on several days. I feel as if my heart is beating faster and can feel nauseous...

I am coming down from 3mg to 2.5mg slowly over 7 weeks and have felt anxious on ...

Mamamia21

•12 days ago

14 Replies

reducing

Morning all The start of September I am down to 5 ….Off to St Ives soon ..if I have a flare up do I go to 6 or 7…. Hoping it won’t happen !! Don’t want to...

Morning all The start of September I am down to 5 ….Off to St Ives soon ..if I...

Sallyhumph

•12 days ago

13 Replies

Want to take advantage of all our features? Just log in!

Those frequent trips to the loo~!.....I've been experimenting and studying my findings!

Sunday, I spent so much time in the bathroom, with the likes of Niagra Falls. I wasn't just buying stocks in Depends; I was buying the Company!!! $17US for 14!...

Sunday, I spent so much time in the bathroom, with the likes of Niagra Falls. I ...

Grammy80

•12 days ago

16 Replies

PMR and PSA

Can pmr increase psa?

FrancisEmmy

•12 days ago

5 Replies

Tingling Palms

I have had PMR for four years. Currently tapering at 5/4.5mg of pred. I recently had a stent fitted in my heart and am currently doing cardio rehab -...

I have had PMR for four years. Currently tapering at 5/4.5mg of pred. I recently...

SudsSuds

•13 days ago

4 Replies

Follow up with Rheumy regarding GCA.

Afternoon everybody,but this is mainly for DL and PMRpro.Just had telephone call with Rheumy ( very sweet man!❤️)!my 3 month check.He was all in agreement with...

Afternoon everybody,but this is mainly for DL and PMRpro.Just had telephone call...

Angelsmummy

•13 days ago

8 Replies

Apparent flare...

Regular hospital appointment a couple of weeks back; feeling fine; gave a blood sample (always difficult getting blood from me, so not a comfortable...

Regular hospital appointment a couple of weeks back; feeling fine; gave a blood ...

Gladys911

•13 days ago

8 Replies

views on new RSV vaccine?

good for us, or tricky?

Alazarin

•13 days ago

6 Replies

The plot thickens!!

Update on eye deterioration. So inflammation markers are normal and vascular ultrasound clear. Still no contact from the opthamology department for an...

Update on eye deterioration. So inflammation markers are normal and vascular ul...

VickySponge

•13 days ago

13 Replies

fluid in hands and ankles

Good morning! I’ve been off prednisone for two months after having been on about six years. I am experiencing sore fingers that seem to be fluid filled in the...

Good morning! I’ve been off prednisone for two months after having been on about...

Whitner

•13 days ago

8 Replies

Aching bones

After my last post I settled down a bit and am now tapering from 6mg to 5mg. I have noticed that most pain I get now is in my bones, especially my collarbone,...

After my last post I settled down a bit and am now tapering from 6mg to 5mg. I h...

Richard170356

•13 days ago

9 Replies

In praise of Specsavers and the NHS!

Hi all, Nothing to do with PMR really , but eye health concerns us all. Yesterday afternoon I suddenly experienced floaters in my right eye - a really weird...

Hi all, Nothing to do with PMR really , but eye health concerns us all. Yester...

artisam

•13 days ago

44 Replies

Thank you

Many thanks to everybody who responded to my first post. I have spoken to my employers and they are very understanding and told me to take what time I need.

Many thanks to everybody who responded to my first post. I have spoken to my em...

ReallyOriginal

•13 days ago

4 Replies

reducing from six to five and half

This is my second week of reducing and I have found when I wake up my shoulders and neck are really muscles are really hard and uncomfortable. Also last night...

This is my second week of reducing and I have found when I wake up my shoulders ...

Blackcat1M

•13 days ago

5 Replies

update on confused by Rheumi consultant

well I spent a lot of last night mulling over yday appt. Today I filled in an econsult to my GP practice. I don’t know them yet so I just hoped I’d get an...

well I spent a lot of last night mulling over yday appt. Today I filled in an ec...

Wraysbury

•13 days ago

12 Replies

Prednisone question

Hi all. I am curious about the best time to take Prednisone? I have GCA and have been taking it when I wake up for the day, but I'm curious about how others...

Hi all. I am curious about the best time to take Prednisone? I have GCA and ha...

GCAsurprise

•14 days ago

10 Replies

Giant cell or not

Hi just wondering how you know if GCA is returning, thanks all x

Harrywogan

•14 days ago

9 Replies

Flare or other issues?

how long after tapering from 5mgs to 4 mgs (down to 4 mgs every day since 3rd week of April), could you experience a flare of PMR, ?

how long after tapering from 5mgs to 4 mgs (down to 4 mgs every day since 3rd we...

arvine

•14 days ago

5 Replies

Advice struggling to get renewed prescription through GP

I need advice, I am in Cambridgeshire about to move. I’ve continuously struggled with the local GP surgery to get an appointment to get my Prednisolobe renewed...

I need advice, I am in Cambridgeshire about to move. I’ve continuously struggled...

ExYogi

•14 days ago

41 Replies

Heads up for another troll/spammer direct to your Chat

I have had - and reported - a troll who wrote direct to my Chat. If anyone else gets such a message please report it immediately - unless you report it, HU...

I have had - and reported - a troll who wrote direct to my Chat. If anyone else ...

PMRpro

Ambassador•14 days ago

8 Replies

When do I take medication while traveling?

HelloThis is the first time of posting. Three years into PMR. I am boarding a plane when I am due to take 5 mg Prednisolone. Is it best to keep to my timings...

HelloThis is the first time of posting. Three years into PMR. I am boarding a p...

Eamonnc04

•14 days ago

15 Replies

Update from post yesterday re needing advice

Thank you for all the helpful comments. Well there was some movement forward. The helpline resulted in a doctor from the rheumy team calling me . She...

Thank you for all the helpful comments. Well there was some movement forward....

VickySponge

•14 days ago

4 Replies

RSV Vaccine and Methotrexate

I have booked my RSV vaccine at the surgery for two weeks time. I have just started injecting methotrexate. I have read that the Covid vaccine is more...

I have booked my RSV vaccine at the surgery for two weeks time. I have just star...

Hidcote

•14 days ago

9 Replies

Predizone increase

Wanted to know if ok to increase my daily prednisone if going on vacation. I'm slow reducing about 1/2 mg a month and currently at 8.5. I know I will be more...

Wanted to know if ok to increase my daily prednisone if going on vacation. I'm ...

Seal49

•14 days ago

6 Replies

first appointments in secondary care in Bristol- what to expect

I was diagnosed with PMR 4 months ago and 3 weeks ago diagnosed with GCA ( symptoms- jaw claudication temple tenderness and transient double vision). I was...

I was diagnosed with PMR 4 months ago and 3 weeks ago diagnosed with GCA ( sympt...

SomersetJB

•14 days ago

10 Replies

Yet another update on Swollen Eye

Back at Moorfields Eye Hospital today. It remains a mystery why my right eye has been such a problem. Good news is that it is better, however, eye pressure...

Back at Moorfields Eye Hospital today. It remains a mystery why my right eye has...

Fatsiajaponica

•14 days ago

7 Replies

confused by rheumatologist

I’ve moved from Midlands to hampshire and saw the new rheumatologist today. I have had PMR for 6 yrs now and have had several flares each yr. today the...

I’ve moved from Midlands to hampshire and saw the new rheumatologist today. I ha...

Wraysbury

•14 days ago

32 Replies

pred dose timing

I note that some people are taking their pred around 2am. I did this with split dose when I’d was dosing for PMR. My PMR quickly progressed to GCA and I was...

I note that some people are taking their pred around 2am. I did this with spli...

Raspberryripple24

•14 days ago

5 Replies

Prednisone and Ibuprofen

I have been down to 1mg Pred. for about 3 weeks now. As I tapered my low back pain has gradually gotten worse, too much sitting I'm sure. (Just too easy to do...

I have been down to 1mg Pred. for about 3 weeks now. As I tapered my low back pa...

Dydee

•14 days ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2024

Frusemide and pred

Anxiety when reducing Predisolon

reducing

Those frequent trips to the loo~!.....I've been experimenting and studying my findings!

PMR and PSA

Tingling Palms

Follow up with Rheumy regarding GCA.

Apparent flare...

views on new RSV vaccine?

The plot thickens!!

fluid in hands and ankles

Aching bones

In praise of Specsavers and the NHS!

Thank you

reducing from six to five and half

update on confused by Rheumi consultant

Prednisone question

Giant cell or not

Flare or other issues?

Advice struggling to get renewed prescription through GP

Heads up for another troll/spammer direct to your Chat

When do I take medication while traveling?

Update from post yesterday re needing advice

RSV Vaccine and Methotrexate

Predizone increase

first appointments in secondary care in Bristol- what to expect

Yet another update on Swollen Eye

confused by rheumatologist

pred dose timing

Prednisone and Ibuprofen

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