Giant cell or not: Hi just wondering how you know... - PMRGCAuk

PMRGCAuk

21,022 members39,680 posts

Giant cell or not

Harrywogan profile image
9 Replies

Hi just wondering how you know if GCA is returning, thanks all x

Written by
Harrywogan profile image
Harrywogan
To view profiles and participate in discussions please or .
9 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Usually a return of pre diagnosis symptoms- what are you experiencing?

Harrywogan profile image
Harrywogan in reply to DorsetLady

Hi DL ,anxiety ,sleepless nights, and had a strange experience today, parked car at swimming pool,and it had small figures on bonnet the car 2along but when I looked again there was nothing xx

Harrywogan profile image
Harrywogan in reply to Harrywogan

Think IAM losing plot xx

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Harrywogan

As per your previous post and my reply - sounds like adrenals struggling. but if it gets too much then speak to your doctor - there is hep out tere for anxiety -and not always medication.

Harrywogan profile image
Harrywogan in reply to DorsetLady

Thanks, DL xx

Angelsmummy profile image
Angelsmummy

Morning Harrywogan,little figures on car?Sounds like Charles Bonnet symptoms which I experienced in the early days of my GCA and now very rarely get.Nope,you are NOT going mad,it is a recognised condition associated with people with sight loss with GCA.Have you lost sight?I used to see dogs,cats and even a Shetland pony,many different variations for different people.Apparently the brain trying to adjust and sending random messages to eye.Good luck to you and if you are still concerned ,google Charles Bonnet and read all about it.I was given literature by the RNIB to ut my mind at rest.x😜

Angelsmummy profile image
Angelsmummy

Sorry,forgot to say,the post from Dorset lady is the most important,a very wise lady and knows what she is talking about,all I am saying that Charles Bonnet MAY come into it but only if you have sight loss I think.x

Angelsmummy profile image
Angelsmummy

Hi HarryWogan,just read my leaflets on CBS and found that people with macular degeneration can get it too,up to 50 per cent of people.So have you got MD?Best wishes,x😜

Harrywogan profile image
Harrywogan in reply to Angelsmummy

Thanks Angelsmummy, but good news wasn't seeing things my daughter tells me there is someone with we Lego men on bonnet of car, just said thankq god lol

Not what you're looking for?

You may also like...

Giant cell

I've just been diagnosed with GCA but haven't been told a lot about it can someone please explain...

Giant Cell Arteritis

Hi, can someone help with describing what the double vision element is with GCA? Most of the time...

Giant Cell Arteritis

I’ve had GCA now for 14 months. Started out with failing vision in my left eye and lost most of my...

Living with giant cell

No longer able to work since giant cell 1 year ago is this normal?

Giant cell arteritis support

Does anyone know a support group in the USA can't seem to find one for GCA