Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,022 members • 39,680 posts

All posts for September 2024

ILKLEY SUPPORT GROUP MEETING - WEDNESDAY 11 SEPTEMBER - 11 AM

PLEASE NOTE NEW VENUE Our next meeting will be at the Clarke Foley Cummunity Centre, Cuncliffe Road, Ilkley, LS29 9DZ, we will be in the small room just...

PLEASE NOTE NEW VENUE Our next meeting will be at the Clarke Foley Cummunity...

Primrose2

•9 days ago

2 Replies

Anaemia anyone?

I am wondering if anyone with PMR and/or GCA (both of which I've got/had) has also been diagnosed with anaemia. I notice that Pernicious Anaemia is another...

I am wondering if anyone with PMR and/or GCA (both of which I've got/had) has al...

DogAgilityObsessed

•9 days ago

10 Replies

A&E visit GCA

Hi all, thank you for your support this morning.Just got back from A&E they were very good sent me to urgent care department not much waiting doc examined my...

Hi all, thank you for your support this morning.Just got back from A&E they were...

Den73

•9 days ago

4 Replies

Want to take advantage of all our features? Just log in!

Hi all, new to this vile condition

Just a little background, I have various conditions, who said getting older was time for enjoyment! So just to quickly narrow it down, I have asthma, under...

Just a little background, I have various conditions, who said getting older wa...

Gilly1372

•9 days ago

32 Replies

GCA concerns

Hi all, please need some advice.I have had a heachache around my temples, not in my jaw feels tender but wouldnt call it pain, for about 2 weeks now. Have...

Hi all, please need some advice.I have had a heachache around my temples, not in...

Den73

•9 days ago

13 Replies

Any thoughts very welcome.

i am 74 year old identifying as a grumpy old man. First diagnosed with PMR by GP ten years ago. If I can recall he put me on a starting ‘campaign’ of 60mg...

i am 74 year old identifying as a grumpy old man. First diagnosed with PMR by G...

JJPenparc

•10 days ago

32 Replies

Video about the history of PMR

great video on YouTube about PMR. best info starts at about 20mins to the end. please watch if you have. PMR...

great video on YouTube about PMR. best info starts at about 20mins to the end. p...

Hidden

•10 days ago

3 Replies

Support Groups

I am interested to know if anyone in the East Midlands, Leicestershire and more specifically North West Leicestershire runs or knows of a support group where...

I am interested to know if anyone in the East Midlands, Leicestershire and more ...

PMRprincess

•10 days ago

22 Replies

Update on aneurysm

I finally had my appointment with a doctor down at the University of Iowa last week. Since he felt that my case was complicated due to my GCA, he decided to...

I finally had my appointment with a doctor down at the University of Iowa last w...

luv2read

•10 days ago

23 Replies

Blood Glucose Monitor

Hi all after having had a result of 48 on my Hba1c test I am thinking of purchasing a blood sugar level monitor to keep a check on things, anyone point me in...

Hi all after having had a result of 48 on my Hba1c test I am thinking of purchas...

Blodders2

•10 days ago

19 Replies

surprise surprise

I’ve been struggling for a few months with Rheumatoid arthritis which I diagnosed myself to my GP. He agreed that the redness and swelling of my hands in...

I’ve been struggling for a few months with Rheumatoid arthritis which I diagnose...

AnniesRyder5

•10 days ago

13 Replies

PMRGCAuk Annual Meeting....I wasn't alone today~!!

After my dress rehearsal last week, I got up at 4:30 AM, Central Time in the States, and was the only person at the Zoom link. I'm thrilled to report that I...

After my dress rehearsal last week, I got up at 4:30 AM, Central Time in the Sta...

Grammy80

•10 days ago

54 Replies

Came off Pred - feet and leg pain

Finished Pred 2 weeks ago after my second bout of PMR in 5 years. I have been on it this time since Ju,y 2023 and reduced slowly. GP told me to reduce to 1mg...

Finished Pred 2 weeks ago after my second bout of PMR in 5 years. I have been on...

Purplelamp

•10 days ago

8 Replies

Thank you to the SOS

Good morning everyone. I want to thank the folks who answered me and gave me advice on pred dosage while I was in hospital 3 weeks ago. The hospital...

Good morning everyone. I want to thank the folks who answered me and gave me adv...

MrsMarigold

•10 days ago

2 Replies

Increase

Hi all I've been on prednisolone for PMR since June on and off decreasing/ increasing, I increased from 10 to 15mg last Saturday but I am still feeling back,...

Hi all I've been on prednisolone for PMR since June on and off decreasing/ incre...

Blodders2

•10 days ago

7 Replies

More Advice

I have already received some reassurance from our wonderful advisors on this subject. I tapered too speedy and was put back on the right track. However, I...

I have already received some reassurance from our wonderful advisors on this sub...

Tamla1964

•10 days ago

5 Replies

feeling unloved?

I have just had my October 17 appt with my rHeumy at Leicester general changed to March 21 2025. I am down to 2 mg working on less than 1/2 mg per 5 or 6 weeks...

I have just had my October 17 appt with my rHeumy at Leicester general changed t...

Trovatello

•10 days ago

10 Replies

Been so busy!

I've been on 7 mg with not much pain .I've had a very busy summer and been on 7 mg for 5 months.Do most pmr sufferers wait til stress has lessened?.Some fun...

I've been on 7 mg with not much pain .I've had a very busy summer and been on 7 ...

Hunter134

•10 days ago

1 Reply

Shingles Vax while on 8mg prednisone?

Hello! Can you tell me what or if you had any reactions to getting the Shingles Vaccine? I want to get it before I end up with shingles, but I'm also scared...

Hello! Can you tell me what or if you had any reactions to getting the Shingle...

potterylady

•11 days ago

29 Replies

Still bad after 6 years,

Hi, I was diagnosed with PMR in May 2019. Started with 15 mgs. I’d managed to get down to 4 mgs when Covid struck in 2021 and was advised to go up to 10mg but...

Hi, I was diagnosed with PMR in May 2019. Started with 15 mgs. I’d managed to ge...

EeneeBee

•11 days ago

16 Replies

Depression

I am down to 6mg, reducing 1mg monthly and I have really bad depression and not sure how do cope with it. I seem to be on the verge of tears most of the time....

I am down to 6mg, reducing 1mg monthly and I have really bad depression and not ...

Ambatu

•11 days ago

38 Replies

is this a flare?

After starting with pmr a year ago I’ve tapered down from 20mg to 2mg of prednisone and felt I was making good progress. About 2 months ago I hurt my right...

After starting with pmr a year ago I’ve tapered down from 20mg to 2mg of prednis...

Knarllyknees

•11 days ago

8 Replies

Prednisolone dose

I have been reduced from 10 to 9 by my rheumatologist going down to 8 after two weeks so will see what happens ! I am also on methotrexate though??

I have been reduced from 10 to 9 by my rheumatologist going down to 8 after two ...

Andrea2727

•11 days ago

4 Replies

Update on Humerus Break

Saw the top man at Addenbrookes yesterday 3 weeks after my break. X-ray showed bone in place and looking good. He said 12 weeks in brace and sling or have the...

Saw the top man at Addenbrookes yesterday 3 weeks after my break. X-ray showed b...

diana1998

•11 days ago

10 Replies

Head sweats

Anyone ever had sweat pouring, literally pouring, out of their head, mainly at the front, if there is even the slightest rise in temperature? This started a...

Anyone ever had sweat pouring, literally pouring, out of their head, mainly at t...

Nagswoman

•12 days ago

21 Replies

Here we go again

Hello, I have been struggling with the usual taper flare.Yesterday I took a 8.00AM blood test before any sustenance, as recommend. As I suspected my Cortisol...

Hello, I have been struggling with the usual taper flare.Yesterday I took a 8....

Southmead

•12 days ago

13 Replies

The plot thickens - unexpected turns

So appointment with ophthamologust today and whilst i am waiting to see the doctor, my rheumatologist turns up to find me. What an unexpected thing to...

So appointment with ophthamologust today and whilst i am waiting to see the doct...

VickySponge

•12 days ago

4 Replies

Diabetes concern

Hi all. Diagnosed in June with PMR started prednisolone 15mg usual taper plan but I am not feeling good at all, after three weeks tapered to 12.5 felt awful...

Hi all. Diagnosed in June with PMR started prednisolone 15mg usual taper plan bu...

Blodders2

•12 days ago

13 Replies

Eye issues and tapering to 0 pred

Hello, two questions for you. One, has anyone has a retinal macroaneurysm? I was very recently diagnosed during a routine examination and wondered if it was...

Hello, two questions for you. One, has anyone has a retinal macroaneurysm? I w...

Sojourn12

•12 days ago

2 Replies

To accept flu and covid jabs invite?

Always had all my flu and covid jabs with no issue. Actually had both the same day in September 23 whilst suffering with PMR but not diagnosed or medicated....

Always had all my flu and covid jabs with no issue. Actually had both the same d...

Phoebenooby

•12 days ago

15 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2024

ILKLEY SUPPORT GROUP MEETING - WEDNESDAY 11 SEPTEMBER - 11 AM

Anaemia anyone?

A&E visit GCA

Hi all, new to this vile condition

GCA concerns

Any thoughts very welcome.

Video about the history of PMR

Support Groups

Update on aneurysm

Blood Glucose Monitor

surprise surprise

PMRGCAuk Annual Meeting....I wasn't alone today~!!

Came off Pred - feet and leg pain

Thank you to the SOS

Increase

More Advice

feeling unloved?

Been so busy!

Shingles Vax while on 8mg prednisone?

Still bad after 6 years,

Depression

is this a flare?

Prednisolone dose

Update on Humerus Break

Head sweats

Here we go again

The plot thickens - unexpected turns

Diabetes concern

Eye issues and tapering to 0 pred

To accept flu and covid jabs invite?

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive