update on confused by Rheumi consultant

[Wraysbury]

well I spent a lot of last night mulling over yday appt. Today I filled in an econsult to my GP practice. I don’t know them yet so I just hoped I’d get an understanding one. I told them everything that happened and said I don’t know what to do now. A wonderful GP rang me back who is up to speed with PMR. He listened, he knows about my previous Consultant and his work. I only had a consultant because we couldn’t get the PMR under control for the first 2 yrs and I had copious problems.

He said what I’m doing is totally ok and he’ll support me with how I want to deal with prednisolone. I felt so supported and respected. We agreed that we can deal with my PMR now, but if I have any problems he’ll refer me to a different consultant. He laughed when I said the man yday said he’d never had a PMR patient for longer than 18 months and that u all said that’s because they left him 🤣

Result! Yey

[PMRpro Ambassador]

Like the sound of this GP!!!!

[Wraysbury in reply to PMRpro]

Hi. Can you tell me where the slow tapering regime is pls. I can’t find it. Thanks 😊

[PMRpro Ambassador in reply to Wraysbury]

Under Tapering in the FAQs - link to the index page is in the box under the post at the top of every thread.

[DorsetLady PMRGCAuk volunteer]

Good to hear -and re tapering plans -either of these - from usual suspects… 😊

healthunlocked.com/pmrgcauk...

healthunlocked.com/pmrgcauk...

[HeronNS]

Excellent!

[Judyliz]

Your post is the first I read this morning, it is truly positive and has given me a warm fuzzy feeling for the day. I'm sure everyone who read your previous post is giving a silent whoop whoop.It definitely helps everyone. Very pleased for you.

[Wraysbury]

thanks. It did me gd too as I saw a glimpse of my old self. I would never roll over and accept that type of behaviour pre PMR and I won’t now!! 💪 xx

[BettyE]

You seem to have struck gold this time.

[Pixix]

great news!

[Rugger]

Hang onto that GP - he's Dr Wonderful!

[LemonZest11]

He sounds like a Keeper. Gold at the end of the 🌈.

[Bcol]

Excellent news