update on confused by Rheumi consultant - PMRGCAuk

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update on confused by Rheumi consultant

Wraysbury profile image
12 Replies

well I spent a lot of last night mulling over yday appt. Today I filled in an econsult to my GP practice. I don’t know them yet so I just hoped I’d get an understanding one. I told them everything that happened and said I don’t know what to do now. A wonderful GP rang me back who is up to speed with PMR. He listened, he knows about my previous Consultant and his work. I only had a consultant because we couldn’t get the PMR under control for the first 2 yrs and I had copious problems.

He said what I’m doing is totally ok and he’ll support me with how I want to deal with prednisolone. I felt so supported and respected. We agreed that we can deal with my PMR now, but if I have any problems he’ll refer me to a different consultant. He laughed when I said the man yday said he’d never had a PMR patient for longer than 18 months and that u all said that’s because they left him 🤣

Result! Yey

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Wraysbury profile image
Wraysbury
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12 Replies
PMRpro profile image
PMRproAmbassador

Like the sound of this GP!!!!

Wraysbury profile image
Wraysbury in reply to PMRpro

Hi. Can you tell me where the slow tapering regime is pls. I can’t find it. Thanks 😊

PMRpro profile image
PMRproAmbassador in reply to Wraysbury

Under Tapering in the FAQs - link to the index page is in the box under the post at the top of every thread.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Good to hear -and re tapering plans -either of these - from usual suspects… 😊

healthunlocked.com/pmrgcauk...

healthunlocked.com/pmrgcauk...

HeronNS profile image
HeronNS

Excellent!

Judyliz profile image
Judyliz

Your post is the first I read this morning, it is truly positive and has given me a warm fuzzy feeling for the day. I'm sure everyone who read your previous post is giving a silent whoop whoop.It definitely helps everyone. Very pleased for you.

Wraysbury profile image
Wraysbury

thanks. It did me gd too as I saw a glimpse of my old self. I would never roll over and accept that type of behaviour pre PMR and I won’t now!! 💪 xx

BettyE profile image
BettyE

You seem to have struck gold this time.

Pixix profile image
Pixix

great news!

Rugger profile image
Rugger

Hang onto that GP - he's Dr Wonderful!

LemonZest11 profile image
LemonZest11

He sounds like a Keeper. Gold at the end of the 🌈.

Bcol profile image
Bcol

Excellent news

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