Parkinsons

[Booklist]

I started with PMR over 2 years ago and have slowly tapered to 4mg. I went to my Dr with a few strange symptoms and she thinks I have Parkinsons as well as PMR. There is a long wait to see a consultant. Is anyone else in this situation? I have found this group such a help during the last 2 years and would be glad of your support and advice.

[PMRpro Ambassador]

Now you have posted you will see a list of Related Posts and the first 3 are all definitely relevant to you but two are from some time ago.

[Rose54]

zHi

I am in same situation

Several symptom of Parkinson’s or MS

Although GP tested all reflexes and they where fine.

This was before CHRISTMAS

I was referred to Neurologist and had appointment arrive for December 29/2024 SO sitting back trying not to worry about things.

Hope you don’t have to wait to long

Rose

[Booklist in reply to Rose54]

thank you Rose54. I wonder if I should ask to be referred privately, not something I have ever done and not sure how to proceed. Hope you getvto see someone before next December.

[Rose54]

l live on a island with one Hospital so to go private for me would involve a lot of travelling .

I am also waiting for a hip operation and that is a eighteen month wait

A friend went private and had to go mainland. 12 times in all for assessment physio check ups to much for me to cope with

You could just contact a private Hospital and enquire about prices

[piglette]

I am so sorry. There are a lot of other people in the same boat so you are not alone. Joining groups such as this and possibly looking at the Parkinson’s Society website you can talk to others, so you will not feel totally alone.

[JanetRosslyn]

Hello Booklist. I've had PMR since 2016 and GCA and extensive LVV since 2019. I'm currently on 4mg Pred. While seeing my GP in Nov 2022 about another matter she noted I had a resting tremor (which I was not aware of). I saw a Neurologist privately a few weeks later - not very helpful - and eventually saw a wonderful NHS Neurologist Nov 2023. He was very thorough and ruled out essential tremor but wanted to monitor things. I'm seeing him again next month. My symptoms have increased and sadly I'm convinced he will definitely confirm Parkinson's now.Meanwhile I've joined a Parkinson's exercise class where I've met some wonderful people, and today they've encouraged me to join a singing group to help my ever faltering voice! We have fun exercising as best we can... netball, tap dancing, zumba gold, seated ballet and on and on. Apparently with Parkinson's the goal is to keep active to slow progression.

I had lots of tears at first... a bit like with PMR and then GCA and LVV.... but now I've accepted I won't die of these things so I'll just have to live with them 🙂

[Pixix]

Yes. My symptoms started during Covid pandemic, so I had a telephone appointment to discuss my hand & arm tremors. As he couldn’t see them, I don’t know how he diagnosed, really, but he thought it was Essential Tremor. I then waited 3 years for a brain scan, & another year for a face to face appointment. I was lucky, my issues are Essential Tremor, & I am trialling a drug to control it. My tremor only happens with movement & not at rest. Hope all goes well for you.