Hot flushes returned since PMR diagnosis - PMRGCAuk

PMRGCAuk

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Hot flushes returned since PMR diagnosis

Shadowboxes profile image
7 Replies

I thought my hot flushes had gone after 8 years of surviving the menopause but since being diagnosed with PMR in March this year they have returned. I wonder if it’s the condition or the steroids that cause it ?

I was lucky and apart from the hot flushes and a few night sweats I didn’t have any after major symptoms of the menopause. I’m off to Cyprus in 10 days and looking forward to some warm sun on my joints but I wonder how my body will now cope with any heat. Has anyone else felt that PMR made their menopause symptoms return?

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7 Replies
Booklist profile image
Booklist

I have hot flushes like the menopausal ones. I didn't have many symptoms of menopause but hot flushes was one. At 78I feel a bit silly fanning myself.

Trovatello profile image
Trovatello in reply toBooklist

Night sweats were the difference between 5 and 4,5 mg. It's the pred !

PMRpro profile image
PMRproAmbassador

It can be either or both. Hot flushes are more common in GCA but aren't unusual in "just" PMR, they were/are a feature of mine.

I find heat more difficult now than I did, especially in sun and actively seek shade once the air temp is above low 20s - though living halfway up an Italian mountain there is real heat in the sun. You will also be likely to burn more easily being on pred so be careful.

Shadowboxes profile image
Shadowboxes in reply toPMRpro

Thank you, I will be covered in factor 30 as we haven’t had any decent sun in the UK to get use to. My legs haven’t seen much daylight yet. 🌞

fondofforest profile image
fondofforest

Hi Shadowboxes,

I absolutely have hot flashes since my diagnosis but am not sure if it is from the PMR or the Prednisone. I was lucky enough to have had very few during menopause so this is a brand new sensation for me and not a fun one!

Shadowboxes profile image
Shadowboxes in reply tofondofforest

Yes it’s not much fun, when our summer eventually arrives and we get some decent weather I will be getting the fan out of the attic.

Alliekat65 profile image
Alliekat65

WOW I'm glad I saw your post thought I was losing my mi d. Had menopause 10 years ago after emergency surgery. and the last few weeks I've been waking up hot sticky with duvet on floor. thanks to theese wonderful peeps I now know why..just not great AGAIN

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