Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,881 posts

All posts for March 2024

Cortisone injection

Good morning all,would like some of your experience of cortisone injection. going for it on Wed,thy say rest a few days and not doing a lot for 2weeks IAM...

Good morning all,would like some of your experience of cortisone injection. goin...

Harrywogan

•7 months ago

16 Replies

Vomiting migraine and pred

My migraines which involve vomiting seem to be returning. If I only take enteric coated pred with no food, how long have I got for it to have gone through my...

My migraines which involve vomiting seem to be returning. If I only take enteric...

Clucket

•7 months ago

19 Replies

Statins and Prednisone

I’ve gone from 20mg Prednisone to now working on 7-1/2mg so far no problems But now my GP recommends Statins for my high Cholesterol …Is this good idea?...

I’ve gone from 20mg Prednisone to now working on 7-1/2mg so far no problems ...

Januzzi

•7 months ago

7 Replies

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Esmeruth7

On Friday I woke up to find my dear husband dead in the chair. I rang 999 who told me to get him on the floor to start cpr. I told them I could not manage that...

On Friday I woke up to find my dear husband dead in the chair. I rang 999 who to...

Esmeruth7

•7 months ago

56 Replies

a gell unlike no other

for pain….i can recommend active care cream and gell advertised in telegraph been invaluable to me during pmr journey and onwards OA both knees with tears.

for pain….i can recommend active care cream and gell advertised in telegraph b...

Linlang

•7 months ago

14 Replies

Normal labs with PMR pain

I tapered off Pred about 4 months ago but am experiencing PMR type pain in shoulders and hips and can feel it in knees and elbows and upper arms a bit. My GP...

I tapered off Pred about 4 months ago but am experiencing PMR type pain in shoul...

BuddyBearF

•7 months ago

10 Replies

dizziness and weaknesd

I have just had a major flare up of PMR. At first the doctors thought I had a bacterial infection, then internal bleeding as I was anaemic, my CRP was...

I have just had a major flare up of PMR. At first the doctors thought I had a ba...

Rainb84

•7 months ago

13 Replies

typical symptoms?

I am again trying to get off prednisolone and after a few ups snd downs am nearly there after starting them in June 2020 at 15mg. I have been following...

I am again trying to get off prednisolone and after a few ups snd downs am nearl...

Loveopera

•7 months ago

11 Replies

Temporal ultra sound

Following my recent post, have had a phone call from rheumatologist, going for a temporal ultra sound tommorrow then on to see him, Are these reliable Thankyou

Following my recent post, have had a phone call from rheumatologist, going for a...

Pierpoint1

•7 months ago

5 Replies

update on statins, Leflunomide & biphosphates

this is a good news story of me ready to charge at doors which gently and easily opened! Over the last 3 weeks I have spoken to and seen three medics who I...

this is a good news story of me ready to charge at doors which gently and easily...

Japsquar

•7 months ago

23 Replies

Hello everyone

I was diagnosed with PMR at the end of January after several months of aching joints with limited mobility, particularly in my shoulders. After a week of...

I was diagnosed with PMR at the end of January after several months of aching jo...

AnnaColuthon

•7 months ago

6 Replies

Update on prolapse operation

Just wanted to update and thank all the lovely people who advised me. I had my operation last Thursday and as PMRpro and others advised me l took my normal...

Just wanted to update and thank all the lovely people who advised me. I had my o...

Pixieharmer

•7 months ago

4 Replies

unsubscribed?

I’ve been following this group for years now since being diagnosed in 2018 with PMR. I find it invaluable and so want to continue receiving daily emails. As of...

I’ve been following this group for years now since being diagnosed in 2018 with ...

Addihudson

•7 months ago

13 Replies

Locoloo

Yesterday 06/03/2024 i ended up in hospital yet again as i was told to go down on steroids i was on 5mg taking 12 each day after 14 days to go to 11 then it...

Yesterday 06/03/2024 i ended up in hospital yet again as i was told to go down o...

Locoloo

•7 months ago

2 Replies

Is it ok to take painkillers with Prednisolone?

I have recently had probable PMR diagnosis and am on day 2 of week’s trial on 15mg prednisolone. Too early to see if it’s having effect but had partially...

I have recently had probable PMR diagnosis and am on day 2 of week’s trial on 15...

Preposterous

•7 months ago

43 Replies

Tapering

Just a quick question about tapering Prednisolone. I have had GCA since Aug 22. Have tapered down to 5mg but had the beginnings of a flare. My rheumatologist...

Just a quick question about tapering Prednisolone. I have had GCA since Aug 22. ...

Noni71

•7 months ago

19 Replies

Prednsolone not working

Hi all, diagnosed with pmr early January this year, started on 15mg Pred about 4 weeks ago, which has had zero effect, recent bloods showing inflamation same...

Hi all, diagnosed with pmr early January this year, started on 15mg Pred about...

Gymrat62

•7 months ago

24 Replies

THANK YOU

Hey and thank you for your lively messages just feeling bit sorry for myself ATM .

Hey and thank you for your lively messages just feeling bit sorry for myself ATM...

Alliekat65

•7 months ago

2 Replies

Giant Cell Arteritis

I’ve had GCA now for 14 months. Started out with failing vision in my left eye and lost most of my vision. Right eye still 20/20 thank god! Started with 60 mg...

I’ve had GCA now for 14 months. Started out with failing vision in my left eye a...

LRevell

•7 months ago

19 Replies

Flare Strategy?

After having a flare 4 months ago and going from 4.5 mg to 10 for a week, then dropping back to 5.5 for 5 weeks, I have now tapered down to 5mg, where I have...

After having a flare 4 months ago and going from 4.5 mg to 10 for a week, then d...

Donna5658

•7 months ago

10 Replies

”roaring” tinnitus and “echoing” ears, signs of a flare?

The age old question - what is causing my symptoms? For the past weeks I’ve been having increased joint, hand, and shoulder tendon pain, the tendon pain...

The age old question - what is causing my symptoms? For the past weeks I’v...

Mstiles

•7 months ago

19 Replies

Adrenal Insufficiency or GCA or both?

I have looked at the FAQs but cannot readily find an answer so here goes.By way of quick update I restarted pred about 3 months at 10mg because my PMR symptoms...

I have looked at the FAQs but cannot readily find an answer so here goes.By way ...

SudsSuds

•7 months ago

13 Replies

New diagnosis

Hi I got my diagnosis today and feel crappyheadaches and the n loss vision in bottom half left eye. 1st told it was NAION but then had 2nd scan and Biopsy 2...

Hi I got my diagnosis today and feel crappyheadaches and the n loss vision in bo...

Alliekat65

•7 months ago

23 Replies

Awaiting GCA diagnosis

After suffering Headaches for a couple of months, temples , stabbing pains in cheek and ear, waking up in the night with terrible painWhile on holiday in Spain...

After suffering Headaches for a couple of months, temples , stabbing pains in ch...

Pierpoint1

•7 months ago

6 Replies

atypical trigeminal neuralgia

Recently diagnosed with atypical trigeminal neuralgia, pain on left side of face/eye/head. I also have rheumatoid arthritis which I take methotrexate 20mg once...

Recently diagnosed with atypical trigeminal neuralgia, pain on left side of face...

PurpleDuckie

•7 months ago

11 Replies

Cortisol serum blood test results, are they normal?

I’m sorry if this information is readily available on Q and A but I have been a headless chicken since being told I had an enlarged pituitary gland three weeks...

I’m sorry if this information is readily available on Q and A but I have been a ...

Zebedee44

•7 months ago

11 Replies

Really upset with my GP

I had a telephone appointment with the GP today, I said as i will have been on 15mg for 3 weeks on Friday, I would like to go down to 12.5mg, so would need...

I had a telephone appointment with the GP today, I said as i will have been on 1...

worrier62

•7 months ago

58 Replies

shoulder scan

hi. I’ve had pmr for nearly 10 years. I’ve been up and down prednisolone like a yo yo. Last year I got to my lowest dose of 3.5 mg, but then had relapse after...

hi. I’ve had pmr for nearly 10 years. I’ve been up and down prednisolone like a ...

CJ-pmr15

•7 months ago

7 Replies

why am I so tired

I was diagnosed with GCA in November. I have been reducing Prednisone every 2 weeks. I started on 40mg and I am now on 12.5mg. I have steroid induced...

I was diagnosed with GCA in November. I have been reducing Prednisone every 2 ...

Ambatu

•7 months ago

12 Replies

confused and perturbed

Have been taking enteric coated Pred almost from the outset of PMR with 10 mg Omeprazole as I have hiatus hernia. I am now down to 1mg pred and am trying to...

Have been taking enteric coated Pred almost from the outset of PMR with 10 mg Om...

Ana-16

•7 months ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2024

Cortisone injection

Vomiting migraine and pred

Statins and Prednisone

Esmeruth7

a gell unlike no other

Normal labs with PMR pain

dizziness and weaknesd

typical symptoms?

Temporal ultra sound

update on statins, Leflunomide & biphosphates

Hello everyone

Update on prolapse operation

unsubscribed?

Locoloo

Is it ok to take painkillers with Prednisolone?

Tapering

Prednsolone not working

THANK YOU

Giant Cell Arteritis

Flare Strategy?

”roaring” tinnitus and “echoing” ears, signs of a flare?

Adrenal Insufficiency or GCA or both?

New diagnosis

Awaiting GCA diagnosis

atypical trigeminal neuralgia

Cortisol serum blood test results, are they normal?

Really upset with my GP

shoulder scan

why am I so tired

confused and perturbed

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