Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,882 posts

All posts for March 2024

GCA Tapering

Thanks to my kind, thoughtful, and new found wise consultants who understand, all of you, I developed some patience, and am finding that time and rest...

Thanks to my kind, thoughtful, and new found wise consultants who understand, al...

Bummed24

•7 months ago

7 Replies

Further Update & Upcoming Rheumatology Appt Advice

Hello all! Back again with my periodic update on my ongoing PMR diagnosis! So.....after struggling when tapering from 12.5mg to 10mg of Prednisolone I finally...

Hello all! Back again with my periodic update on my ongoing PMR diagnosis! So.....

Paulx222

•7 months ago

16 Replies

Fir a Friend: Tongue is red and Tender

Hi, I have a friend with GCA from another site. She was diagnosed in October 2023. Currently onn10 mg. Prednisone. She called this morning saying that the...

Hi, I have a friend with GCA from another site. She was diagnosed in October 202...

Lenore58

•7 months ago

16 Replies

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Claiming PIP for PMR

Hi has anyone got any advise on this and can we make a claim

Waverley63

•7 months ago

28 Replies

Exhausted

Hi I was diagnosed in December with PMR, was put on 15mg of Predosline then told to drop to 10mg after 5 weeks. My symptoms returned and I went up to 20 to...

Hi I was diagnosed in December with PMR, was put on 15mg of Predosline then tol...

Waverley63

•7 months ago

41 Replies

Taper

So my rheumy had me bump up to 15 mg of pred (I've been at 4.5 for a couple of years) due to the increase in my pain. I was at 15 for a week and it was quite...

So my rheumy had me bump up to 15 mg of pred (I've been at 4.5 for a couple of y...

Maggieart

•7 months ago

10 Replies

gadgets

The posts following Bridge31's about gardening and housework made me chuckle so much that I thought I' d add my items to relieve pain and discomfort when...

The posts following Bridge31's about gardening and housework made me chuckle so ...

random901

•7 months ago

12 Replies

PMR flare!

I think I may be in the midst of a flare. Haven't felt quite right for the past week or so, I am thinking due to stress over recent diagnosis of hiatus hernia...

I think I may be in the midst of a flare. Haven't felt quite right for the past...

gillsky8

•7 months ago

2 Replies

Posts

Not getting posts today

Daffodilia

•7 months ago

15 Replies

GCA Headache while tapering

Hello, I have GCA and PMR for almost 2 years now. I've tapered down to 10.5mg, but while on this dose, I keep getting headaches on the left side of my head in...

Hello, I have GCA and PMR for almost 2 years now. I've tapered down to 10.5mg, b...

potterylady

•7 months ago

9 Replies

GCA symptoms on 40mg pred

I have posted re my recent GCA diagnosis a few times, please refer if nec.I have been on 40mg pred for a month as advised by rheumy. His advice is to stay on...

I have posted re my recent GCA diagnosis a few times, please refer if nec.I have...

kalgoorlie

•7 months ago

14 Replies

progress with tapering

Hi All, I am currently at 2.25mg prednisone and am noticing that I have a bit more energy these days. I thought it would be interesting to review for myself...

Hi All, I am currently at 2.25mg prednisone and am noticing that I have a bit m...

spacevoyager

•7 months ago

8 Replies

Remission

I want to thank members of this forum for your insight and support over the past 2 1/2 years I have been dealing with GCA and everything that goes along with...

I want to thank members of this forum for your insight and support over the past...

Preacherball

•7 months ago

15 Replies

magnesium citrate

I have had PMR for 4 years. I’m down to 3mgs. My question is I have taken magnesium citrate off and on for excruciating leg night cramps but it doesn’t agree...

I have had PMR for 4 years. I’m down to 3mgs. My question is I have taken magnes...

ellarowan

•7 months ago

35 Replies

please read my bio, any response is appreciated

see bio

Unfortunate1

•7 months ago

26 Replies

Any advice to get back on track please?

Hi kind and wise experts, I have completely stuffed up my GCA dosing regime and am an aching, weepy, exhausted (and clearly self indulgent!) mess😱😂 I...

Hi kind and wise experts, I have completely stuffed up my GCA dosing regime an...

Happyexplorer

•7 months ago

12 Replies

Update PMR 2 months since diagnosis

Hi everyone, this forum has been a lifeline for me - thank you. It's given me the knowledge to ask the right questions and feel confident in questioning and...

Hi everyone, this forum has been a lifeline for me - thank you. It's given me th...

TillyBrown

•7 months ago

12 Replies

Newbeing new to this and never even heard of it all your help has been invaluable. so THANK YOU

scary but glad of this site

Alliekat65

•7 months ago

1 Reply

Flare update

Just a little update regarding my previous post (not sure whether I should have added to that post or create a new one). The day after I’d posted I got a call...

Just a little update regarding my previous post (not sure whether I should have ...

Choco-Holic

•7 months ago

9 Replies

Sudden loss

Well dear friends it is a week today and this exact time they were working on my dear husband to no avail. The agony continues because the coroner rang me...

Well dear friends it is a week today and this exact time they were working on my...

Esmeruth7

•7 months ago

39 Replies

7 day trial pred completed

I’ve recently been diagnosed with PMR. I have completed my 7 day trial on 15 mg this morning. The pain in my right shoulder reduced significantly over the...

I’ve recently been diagnosed with PMR. I have completed my 7 day trial on 15 mg ...

VueltaSkelta

•7 months ago

11 Replies

Side effects of methotrexate?

I've been taking prednisone for PMR for a year--had no clinical signs of GCA, but have had persistent very high CRP levels for several months. Finally my...

I've been taking prednisone for PMR for a year--had no clinical signs of GCA, bu...

Carnivoreyogi

•7 months ago

19 Replies

PMR pain or Adrenal issue

Hello, I have not had PMR pain in over a year. I do have GCA too. I just reduced my prednisone by a half mg a few days ago. My hips and knees are bothering me...

Hello, I have not had PMR pain in over a year. I do have GCA too. I just reduced...

Plains

•7 months ago

7 Replies

blood tests

hi, had blood test results and they’re all abnormal. Speaking to GP on Monday but wondered if anyone knows if a CRP result of 11 indicates polymyalgia?

hi, had blood test results and they’re all abnormal. Speaking to GP on Monday bu...

scooby96

•7 months ago

20 Replies

Gut analysis

I recently provided a sample for analysis and received the results last week. I had a follow up appointment with Gemma my Funtional Health Practitioner (in...

I recently provided a sample for analysis and received the results last week. ...

IdasMum

•7 months ago

9 Replies

Flare up.

I'm not sure if I'm having a flare up as I'm aching all over and feel so tired all the time . I was diagnosed with polymialgia rheumatica 2 years ago and...

I'm not sure if I'm having a flare up as I'm aching all over and feel so tired a...

Kazm04

•7 months ago

9 Replies

He's just £48 away from smashing his target UPDATE Thanks to you all he smashed his first target and is now well on his way to the £1k

I wrote a post a few weeks ago about a guy running the Leeds marathon to raise money for our charity PMRGCAuk, after his wife's good friend tragically and...

I wrote a post a few weeks ago about a guy running the Leeds marathon to raise m...

tangocharlie

•7 months ago

11 Replies

Melanoma Surgery while taking Actemra and Prednisone

Hello, I have GCA/PMR and currently on 2.5mg prednisone and Actemra every other week. I just found out I have to have a melanoma surgery, and a surgery called...

Hello, I have GCA/PMR and currently on 2.5mg prednisone and Actemra every other ...

Pamk1949

•7 months ago

7 Replies

Near the end?

Hi, I'm Terry, male 75 yrs old and had never heard of PMR till I got it 2years ago. I had a fall, flat on my back and about 10 days later could hardly...

Hi, I'm Terry, male 75 yrs old and had never heard of PMR till I got it 2yea...

Albert0

•7 months ago

3 Replies

weight and breakfast

Hi me againI was wondering wat ya guys ate with your prednisone due to work hours I often don't eat till 10/11 am and am struggling to take the pills due...

Hi me againI was wondering wat ya guys ate with your prednisone due to work h...

Alliekat65

•7 months ago

60 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2024

GCA Tapering

Further Update & Upcoming Rheumatology Appt Advice

Fir a Friend: Tongue is red and Tender

Claiming PIP for PMR

Exhausted

Taper

gadgets

PMR flare!

Posts

GCA Headache while tapering

GCA symptoms on 40mg pred

progress with tapering

Remission

magnesium citrate

please read my bio, any response is appreciated

Any advice to get back on track please?

Update PMR 2 months since diagnosis

Newbeing new to this and never even heard of it all your help has been invaluable. so THANK YOU

Flare update

Sudden loss

7 day trial pred completed

Side effects of methotrexate?

PMR pain or Adrenal issue

blood tests

Gut analysis

Flare up.

He's just £48 away from smashing his target UPDATE Thanks to you all he smashed his first target and is now well on his way to the £1k

Melanoma Surgery while taking Actemra and Prednisone

Near the end?

weight and breakfast

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2024

GCA Tapering

Further Update & Upcoming Rheumatology Appt Advice

Fir a Friend: Tongue is red and Tender

Claiming PIP for PMR

Exhausted

Taper

gadgets

PMR flare!

Posts

GCA Headache while tapering

GCA symptoms on 40mg pred

progress with tapering

Remission

magnesium citrate

please read my bio, any response is appreciated

Any advice to get back on track please?

Update PMR 2 months since diagnosis

Newbeing new to this and never even heard of it all your help has been invaluable. so THANK YOU

Flare update

Sudden loss

7 day trial pred completed

Side effects of methotrexate?

PMR pain or Adrenal issue

blood tests

Gut analysis

Flare up.

He's just £48 away from smashing his target *UPDATE* Thanks to you all he smashed his first target and is now well on his way to the £1k

Melanoma Surgery while taking Actemra and Prednisone

Near the end?

weight and breakfast

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

He's just £48 away from smashing his target UPDATE Thanks to you all he smashed his first target and is now well on his way to the £1k