On Friday I woke up to find my dear husband dead in the chair. I rang 999 who told me to get him on the floor to start cpr. I told them I could not manage that because he was a fit 6ft man. Thd call handler then just said that there were no ambulance available at the moment and just ring 111 or my GP. I then rang my daughter who lives up the road and she was here within minutes and we managed to get him on the floor and she commenced Cpr and rang ambulance who were here within 5 minutes. They worked on him for the 30mins but unfortunately it was too late. I am absolutely heartbroken. He was my rock and has looked after me so well since my PMR/GCA journey in 2021. All the neighbours thought it was me when they saw the ambulance and then police outside and were so shocked to find out it was him.On Tues I upped the steroids because I seized up and could hardly move. I was on 6mg but I upped it to 16 and can move a bit better. I was going to try this for 3 days and then go back to 6mg. Am I doing the right thing.
I am so sorry for this long post but in some ways it has helped me writing things down.
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Esmeruth7
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So sorry to hear about your husband…you must be devastated. It’s difficult enough when expected, but when it happens like that even more so.
I would take the extra for 7 days, and then drop back to 10mg.. you will need extra to help you through the next few weeks [at the very least]. There’s a lot for you to process mentally, and although your daughter is close by, a lot physically as well. So just make sure your PMR is under control… so you aren’t worrying about that.
A few of us have been through same as you… and although you are on automatic pilot for a while, things will hit you in time, so please seek all the help you require in future, either through us or a bereavement counsellor… whatever and whenever it works for you.
oh I’m so sorry to hear this, how sad for you and lack of compassion from 999. I’m glad your daughter was able to come and get help even though it didn’t help.
Dear Esmeruth I can't even imagine how difficult this has been for you. Take the wonderful advice from the experts on here and be gentle with yourself. In my prayers x
Sorry to hear about your husband passing.When it is a sudden death it is hard to to process this has happened.Be kind to yourself,glad to hear you have a daughter near who is able to help you when needed.Thinking of you at this sad time.
I'm so sorry - and not in the least surprised you have seized up. DL has already said what I would say - we have both been there though for us it was expected and not such a shocking surprise.
Look after yourself - and we are always here for you. Seek all the help you can get - there is a lot they can't take away from you but every little helps.
Dear Esmeruth I am so very sorry to hear of your loss. A terrible shock which will affect you dreadfully. Sending you every good wish, and do keep in touch 💮
What a dreadful shock you must have had - I am so very sorry for the loss of your husband. What a good thing your daughter is close by to help you. Take care of yourself and never be worried about asking anything here - everyone is so very kind and empathetic.
I am so very very sorry for the great shock you’ve had on losing your dear husband. This is such a caring group please post on here whenever you need to. You have already received excellent advice. Will be praying for you for the coming days.
sorry to hear your sad news the shock must have been terrifying. Glad to know you have family with you to share the burden and comfort you. I’m sending deepest sympathy to you .
Your post brought tears to my eyes, what a terrible, terrible shock for you. I’m new to PMR and my husband has been a gem helping me out so can’t imagine what you must be going through now. Everyone has posted such kind thoughts and I can only echo those. Be kind to yourself and accept the love that comes through prayer
Oh , Esmeruth So sorry what a terrible shock and you are being so brave .. It seems a lot of us have lost our dearest rock so we all know what it is like and our hearts go out to you ... Atleast you have reached out to HealthUnlocked .. I only have to open my computer and there are posts with answers before I have even asked them and I see you have already had excellent advice ... Wishing you find comfort Take care ...
So sorry for your loss, it must have been such a shock for you. As Dorsett lady said it’s bad enough when it’s expected. Be kind to yourself and accept any offers of help x
🌷 I'm so sorry, what a terrible shock. It's good you and your daughter can support each other at this time. And take what you need to control your symptoms. Tapering and dosage concerns can wait. 🌺
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