I have posted re my recent GCA diagnosis a few times, please refer if nec.I have been on 40mg pred for a month as advised by rheumy. His advice is to stay on 40mg for a minimum of one month then drop to 30mg for min of one month.
I would say my symptoms generally have dropped by about 85-90% since initial pain. The main area of pain was and has always been in front of my right ear with the odd twinge in the ear.
But in the last few days and right now I have been getting a bit more pain in front of my ear, as well as the odd twinge in my ear, a bit of pain up towards where my biopsy scar is, and tinnitus.
This morning it occurred a couple of hours before my pred dose was due, but tonight it is occurring again and it is within 10 hours of taking pred.
I am reluctant to drop to 30mg after one month so have stayed on 40mg.
I'd rather not have this pain at all...it is not severe but doesn't seem right, and I'd rather not have it at all.
I will contact rheumy on monday but wondered if you thought this is normal after only one month on pred, or does it sound like the dose needs upping?
I don't like the thought of upping the dose, and he recommended 40mg as I have no eye issues.
Thanks!