Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,882 posts

All posts for November 2023

covid booster causing PMR flare?

I’d welcome any thoughts/advice please. Had covid booster, 4th, last Friday. Modena same as last year but under its new name, Spikway. Sore arm, very, very...

I’d welcome any thoughts/advice please. Had covid booster, 4th, last Friday. M...

Hulotsholiday

•11 months ago

63 Replies

For patients with GCA vasculitis

Dear fellow vascies, can I ask you to complete this very short survey? I know that PMR causes fatigue as well, but please only do the survey if you are...

Dear fellow vascies, can I ask you to complete this very short survey? I know t...

zoe69

•11 months ago

63 Replies

recovering adrenals.

I’ve recently settled on taking 5mg Pred for over a month, and now feel good. For the last few months I’ve had gradual weight loss, diarrhoea and fatigue. The...

I’ve recently settled on taking 5mg Pred for over a month, and now feel good. Fo...

Sumojo

•11 months ago

30 Replies

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PMR - High Altitude - My trip to Bolivia

Well, I survived my birding trip to Bolivia! Thank you for your support before I went away, when I was having a wobble about the health insurance. Apologies...

Well, I survived my birding trip to Bolivia! Thank you for your support before ...

Gimme

•11 months ago

26 Replies

Using a chiropractor to help with pmr

Had a lot of neck issues with pmr and sometimes after playing golf it would lock up for days. Been seeing a Mctimoney chiropractor, very gentle, no heavy...

Had a lot of neck issues with pmr and sometimes after playing golf it would lock...

camshall

•11 months ago

3 Replies

PMR dealing with vision problems

Hi all just joined this site as I am having vision problems due to my PMR and my medication which is prednisolone I am currently taking 15mg and...

Hi all just joined this site as I am having vision problems due to my PMR an...

bluey58

•11 months ago

17 Replies

Does Timing of Prednisone Matter?

I started taking 15mg of Prednisone for PMR over 14 months ago. My tapering had been fairly successful until I reached 4.5mg. This coincided with a 2 week...

I started taking 15mg of Prednisone for PMR over 14 months ago. My tapering had ...

Donna5658

•11 months ago

7 Replies

Upcoming rheumy appointment

In quick summary I was diagnosed just over three years ago with PMR. I have had five failed tapers without the benefit of this group. After no pred for 10...

In quick summary I was diagnosed just over three years ago with PMR. I have had ...

SudsSuds

•11 months ago

39 Replies

freezing and a biopsy for skin issues, raise pred?

hello all, 3 days ago I had two red spots about the size of a nicklel on my lower leg frozen off and a bump on my back shaved for a biopsy. The...

hello all, 3 days ago I had two red spots about the size of a nicklel on ...

Mstiles

•11 months ago

6 Replies

Memories

Today the photo feed gave me a reminder of the photos I had taken 4 years ago. One year following diagnosis with PMR, I was with friends at the cliffs of...

Today the photo feed gave me a reminder of the photos I had taken 4 years ago. O...

Harbel

•11 months ago

10 Replies

3rd attempt at tapering down from 5mg prednisolone.

Diagnosed May 2022, started with 30mg tapering down until I was on 7mg when symptoms began to appear again. I continued down to 2mg hoping the body would...

Diagnosed May 2022, started with 30mg tapering down until I was on 7mg when symp...

camshall

•11 months ago

27 Replies

Update after cardiac catheterization.

First a BIG THANK YOU for all the advice and support. I felt you with me every step of the way. The catheterization showed no narrowing of the major cardiac...

First a BIG THANK YOU for all the advice and support. I felt you with me every ...

agingfeminist

•11 months ago

29 Replies

Purple thumb

Hello there, this might not be anything to do with PMR but I thought I'd mention it just in case someone else has experienced this. About two weeks ago my...

Hello there, this might not be anything to do with PMR but I thought I'd mention...

Pr0jection

•11 months ago

20 Replies

steroids and diuretics

we may need to discuss some diuretics with the GP. Mum is currently receiving some respite care and her legs are becoming swollen….they’re not as good as...

we may need to discuss some diuretics with the GP. Mum is currently receiving so...

RT18

•11 months ago

9 Replies

Opportunity to participate in research on fatigue in vasculitis

This is a simple survey about how patients with vasculitis in the UK live with fatigue and adapt to it....

This is a simple survey about how patients with vasculitis in the UK live with f...

PMRpro

Ambassador•11 months ago

17 Replies

Is it pmr?

Hi. Another quest for your opinions please. Have had stiffness and aches for 2 months worst was two weeks ago, but now stiffness and aches are improving. I...

Hi. Another quest for your opinions please. Have had stiffness and aches for 2 m...

pastamaid

•11 months ago

10 Replies

?Prednisolone causing Stomach problems

I have been on Prednisolone for nearly 3 years and about 6 weeks ago I had managed to taper down to 4.5mg when I felt pain returning in my arms and shoulders....

I have been on Prednisolone for nearly 3 years and about 6 weeks ago I had manag...

Jomaur

•11 months ago

7 Replies

Wife wants to know if leftover prednisone can be used for general pain like taking an OTC pain pill, aspiring ibuprofen etc..

Simply short term like a couple of days. IT does seem to be a powerful drug though, but what about very short term use?

Simply short term like a couple of days. IT does seem to be a powerful drug thou...

sdowney717

•11 months ago

6 Replies

Sciatic Nerve and Prednisone

I am not sure anyone may want to comment on this, but i will ask anyway. I'm posting for my 89 year old sister who has been on 10mg of Prednisone for at least...

I am not sure anyone may want to comment on this, but i will ask anyway. I'm po...

RaisinBran

•11 months ago

53 Replies

GCA - Mums current condition

We have finally made contact with both a Neulogogist - Dr. Ignaccio Garcia Bassterre and Rheumatologist Dr. Anna Nieto near Malaga. Dr. Bassterre through Dr....

We have finally made contact with both a Neulogogist - Dr. Ignaccio Garcia Basst...

DianaAdshead

•11 months ago

4 Replies

Light on the horizon?

On Thursday I attended my PMR/GCA Support Group meeting in Southend. Prof Dasgupta came to speak to us and I thought some of you might be interested to hear...

On Thursday I attended my PMR/GCA Support Group meeting in Southend. Prof Dasgup...

Kendrew

•11 months ago

37 Replies

MtX or am I just unlucky?

I have been on 20 mg MtX for now 3 weeks, titrating up over 3 months. I just recvered from an UTI that has needed 2 rounds of antibiotics (hope to be clear...

I have been on 20 mg MtX for now 3 weeks, titrating up over 3 months. I just rec...

krillemy

•11 months ago

14 Replies

Bad Back

Been off Prednisone for six weeks after a four year journey. Before PMR and Prednisone I suffered with my back but whilst on steroids I didn’t. I have had a...

Been off Prednisone for six weeks after a four year journey. Before PMR and Pred...

Iamfedup

•11 months ago

5 Replies

New research??

I’m not thinking of trying this as I’m happy with how my tapering is going and I’m feeling pretty ok. But I read this on another site and the person who...

I’m not thinking of trying this as I’m happy with how my tapering is going and I...

Bluemoonbrummie

•11 months ago

4 Replies

is it a flaire

hello everyone. I am currently on 1mg of pred although I have had pain in my neck for a while but it is not to bad but I have started to get pain at the top...

hello everyone. I am currently on 1mg of pred although I have had pain in my ne...

Sandidee

•11 months ago

25 Replies

what is normal when tapering?

I have had PMR for 3 years. Started at 25mg and was down to 6.25mg. I only get 5mg tablets so that is a bit challenging but I do manage to break into rough...

I have had PMR for 3 years. Started at 25mg and was down to 6.25mg. I only ge...

Corriescot

•11 months ago

13 Replies

Down to half a mg of Prednisolone daily, but what is this?

I am down to half a mg of Prednisolone daily, with hopes of being steroid free by the new year, but have been having shooting pains in fingers for the last...

I am down to half a mg of Prednisolone daily, with hopes of being steroid free b...

Allum

•11 months ago

14 Replies

Inflamation/magnesium

Hi Everyone, I have a question for the wise ones. I will try to keep it as short as possible. In early September feeling good I took the heavy loppers to the...

Hi Everyone, I have a question for the wise ones. I will try to keep it as short...

Dukeyears

•11 months ago

2 Replies

stop prednisone with flu vaccine?

I was told not to take my prednisone and antiviral to receive flu vaccine. Has anyone heard of that? That it would be less potent. When do we recommence ?...

I was told not to take my prednisone and antiviral to receive flu vaccine. Has a...

bluegirl7

•11 months ago

9 Replies

How to taper off 15mg Lansoprazole

Hi I have been on lansoprazole for about 2.5 months now and about to try come off them. I am on 15mg. I've started by taking one and then missing one the next...

Hi I have been on lansoprazole for about 2.5 months now and about to try come of...

HappyCanola

•11 months ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2023

covid booster causing PMR flare?

For patients with GCA vasculitis

recovering adrenals.

PMR - High Altitude - My trip to Bolivia

Using a chiropractor to help with pmr

PMR dealing with vision problems

Does Timing of Prednisone Matter?

Upcoming rheumy appointment

freezing and a biopsy for skin issues, raise pred?

Memories

3rd attempt at tapering down from 5mg prednisolone.

Update after cardiac catheterization.

Purple thumb

steroids and diuretics

Opportunity to participate in research on fatigue in vasculitis

Is it pmr?

?Prednisolone causing Stomach problems

Wife wants to know if leftover prednisone can be used for general pain like taking an OTC pain pill, aspiring ibuprofen etc..

Sciatic Nerve and Prednisone

GCA - Mums current condition

Light on the horizon?

MtX or am I just unlucky?

Bad Back

New research??

is it a flaire

what is normal when tapering?

Down to half a mg of Prednisolone daily, but what is this?

Inflamation/magnesium

stop prednisone with flu vaccine?

How to taper off 15mg Lansoprazole

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