Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for November 2023

GCA Update

hi wonderful, helpful people, My rheumatologist agreed yesterday to drop my prednisone dosage from 60 to 50 mg. I am hoping that will make a difference with...

hi wonderful, helpful people, My rheumatologist agreed yesterday to drop my pr...

•6 months ago

salt craving

I’ve been gently tapering using DL’s taper plan and I’ve been fine at 5.5 mg for the last 2 weeks. I’ve noticed over the past few weeks as I tapered down from...

I’ve been gently tapering using DL’s taper plan and I’ve been fine at 5.5 mg for...

Bluemoonbrummie

•6 months ago

Kevzara

3rd Rheumy suggested this since I have such bad side effects from prednisone after 30 months. Anybody tried this $4300 stuff?

3rd Rheumy suggested this since I have such bad side effects from prednisone aft...

EngineerMatthew

•6 months ago

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Excessive loss of salt

I have had PMR for five years. At the same time I’ve been on a diuretic for variable blood pressure. I often feel overwhelmingly tired and lacking any sort of...

I have had PMR for five years. At the same time I’ve been on a diuretic for var...

•6 months ago

Research to identify barriers to PMR diagnosis

We’re really excited to let you know about a new research project titled The Polymyalgia Paradox. We’re running this with the University of Leeds, and it's...

We’re really excited to let you know about a new research project titled The Pol...

Partner•6 months ago

live yoghurt and prednisolone

I debated whether to add this to the current discussion or start with a fresh question. Lots of you say you take prednisolone with live yoghurt, but when I...

I debated whether to add this to the current discussion or start with a fresh qu...

•6 months ago

Advice please.

Hi I’m in A&E at the moment with my 87 year old mother. Found her this morning lying in blood soaked hair and pyjama top with cuts to her face and head. She’d...

Hi I’m in A&E at the moment with my 87 year old mother. Found her this morning ...

•6 months ago

Surgery and PMR?

How important is the fact that you have PMR relevant to hospital treatment and surgery? I am on a low dose of Prednisolone and recently had abdominal...

How important is the fact that you have PMR relevant to hospital treatment and ...

•6 months ago

Test results

Hi - I had my blood test results back CPR 5 CK 203 they wouldn’t do the ERS test at my doctors surgery .unknowingly My rheumatologist looked at the results...

Hi - I had my blood test results back CPR 5 CK 203 they wouldn’t do the ERS test...

•6 months ago

Shingrix Vaccine

Hi, would just be interested in your views/advice please.I apparently had shingles years ago in my 30s I think, but I had no rash. And I believe I had...

Hi, would just be interested in your views/advice please.I apparently had shingl...

•6 months ago

COQ10

👋 to allHas anyone tried COQ10 supplement? Have been recommended to try it by 'holistic' nutritionist. Was very impressed with her research into AI...

👋 to allHas anyone tried COQ10 supplement? Have been recommended to try it by '...

•6 months ago

depression/anxiety

can anyone explain. Read a lot on here about cortisol/adrenaline levels. I will soon be down to 4 mg daily from 50 started August 2022. Can either of these 2...

can anyone explain. Read a lot on here about cortisol/adrenaline levels. I will...

•6 months ago

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