Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,881 posts

All posts for November 2023

Emergency cardiac admission to hospital. Advice please.

I had severe left sided pain Wednesday evening. Grabbed my hospital bag and took a taxi to emergency. It wasn't a heart attack but i was admitted to...

I had severe left sided pain Wednesday evening. Grabbed my hospital bag and too...

agingfeminist

•11 months ago

52 Replies

Prednisone free for 3 weeks

Note: I read my daily HealthUnlocked update with interest everyday and am very thankful for the keen incite in all areas of my journey. PMR since Spring of...

Note: I read my daily HealthUnlocked update with interest everyday and am very t...

Manderson

•11 months ago

5 Replies

Amlodipine

Hello everyone, I realise this may not be relevant on this site, but I’ve been struggling with palpitations and anxiety for a few months. I had put this down...

Hello everyone, I realise this may not be relevant on this site, but I’ve been...

Mrsd12f

•11 months ago

18 Replies

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Timing of flu vaccine when on weekly Tocilizumab

Hello all After an unsuccessful trial of 5 months without Tocilizumab, I am back on weekly injections. It's also time to have my flu jab. In the past when on...

Hello all After an unsuccessful trial of 5 months without Tocilizumab, I am back...

Frenchduck

•11 months ago

6 Replies

eyes and Pred

I was diagnosed with PMR 12/22 starting on 15mg Pred. Currently at 11mg on my weaning progress having had too many stresses physical & mental to go faster...

I was diagnosed with PMR 12/22 starting on 15mg Pred. Currently at 11mg on my ...

mullochs

•11 months ago

6 Replies

Advice on medication

Over the last couple of weeks I have had pains in my stomach and for longer than that regular bladder problems. Always feeling I need to go to the toilet. I...

Over the last couple of weeks I have had pains in my stomach and for longer than...

Callymac

•11 months ago

11 Replies

Not always Polymyalgia!

I am lucky with my rheumatologist. At a recent appointment I mentioned that turning my head from side to side was painful. She set me up for an immediate neck...

I am lucky with my rheumatologist. At a recent appointment I mentioned that turn...

Thelmarina

•11 months ago

38 Replies

Tests for adrenal function

Good day, forum, and thank you for all the good advice over the years. I have had PMR since 2019, and have been able to manage the symptoms with prednisone...

Good day, forum, and thank you for all the good advice over the years. I have h...

Marinescience

•11 months ago

23 Replies

1mg Enteric Coated Prednisolone tablets

Does anybody get Enteric coated Pred in 1mg tablets prescribed?...My doctor just prescribed them to be gentler on my stomach and sent the prescription to the...

Does anybody get Enteric coated Pred in 1mg tablets prescribed?...My doctor just...

pammy_hyland

•11 months ago

98 Replies

Swollen Hand Update

My very painful swollen hand is 85% better after taking a little extra prednisone. I think I over used my hand while doing some housework.

My very painful swollen hand is 85% better after taking a little extra prednison...

noslak

•11 months ago

4 Replies

Vitamin D

I'm taking a vitamin D supplement but I'm not sure as to what is the best Vitamin D/ product to take. I've tried several, there are so many many types and...

I'm taking a vitamin D supplement but I'm not sure as to what is the best Vitami...

Bobbury

•11 months ago

17 Replies

When does it go?!

Hey everyone. Would really love some positive replies 🤞 My story so far…. I had hip replacement in Feb 22…by Oct 22 I could not get out of bed….had to...

Hey everyone. Would really love some positive replies 🤞 My story so far…. I...

Poly1975

•11 months ago

18 Replies

update on UTI

Those of you who have been following my saga of urinary sepsis. I am ready for it now and had two episodes of infection that I jumped on with the emergency...

Those of you who have been following my saga of urinary sepsis. I am ready for i...

EdithWales

•11 months ago

29 Replies

residual symptoms of PMR

I was diagnosed with PMR in the fall of 2022. I was put on 15 mg of Prednisone and slowly tapered down through the year. It’s been about three months since...

I was diagnosed with PMR in the fall of 2022. I was put on 15 mg of Prednisone...

Izzie1020

•11 months ago

13 Replies

Hip replacement 5days on!!!😵‍💫

5 days post op now and if I’m honest it’s been more painful than I anticipated!!! Doing everything I’ve been told and I am walking very wel with my crutches...

5 days post op now and if I’m honest it’s been more painful than I anticipated!!...

Hirwaen

•11 months ago

18 Replies

PMR unstable after four and a half years.

Advice please re a flare or worsening of PMR. Down to 6mg Pred after 4.5 years but feeling I was making progress. A flare in June (kid brother v sick) led me...

Advice please re a flare or worsening of PMR. Down to 6mg Pred after 4.5 years b...

Bachfugue

•11 months ago

33 Replies

Cost of tocilizumab

My NHS entitlement to TCZ will expire soon. Has anyone tried to 'go private' and pay for it?

My NHS entitlement to TCZ will expire soon. Has anyone tried to 'go private' and...

Duncoding

•11 months ago

28 Replies

Latest update on Care for PMRGCA

Rheumatologists; We have emailed both Sara Manrique-Arija and Natalia Mena Vázquez, without reply. We have made contact with Dr Anna Nieto based at the Queron...

Rheumatologists; We have emailed both Sara Manrique-Arija and Natalia Mena Vázq...

DianaAdshead

•11 months ago

24 Replies

Bowel inflammation - any link to PMR/GCA?

I have had problems with diarrhoea for several years now. I have had bad reactions in the past to sertraline (antidepressant) and amoxillin, with constant...

I have had problems with diarrhoea for several years now. I have had bad reactio...

Broseley

•11 months ago

21 Replies

Methotrexate and Prednisone

So now had 3 weeks of Meth. 6x2.5 once a week and Pred. down to 30mg a day with planned slow reduction over the next few weeks as Meth can can take a while, no...

So now had 3 weeks of Meth. 6x2.5 once a week and Pred. down to 30mg a day with ...

Doublef

•11 months ago

4 Replies

Raised ESR, normal CRP

Hi all you friendly folk in my phone. GP diagnosed PMR Dec 2021. ESR 58, CRP 13. (My records state my ESR was 40 in 2016 though nothing was said it done about...

Hi all you friendly folk in my phone. GP diagnosed PMR Dec 2021. ESR 58, CRP 13....

CygnusX1

•11 months ago

6 Replies

Advice about sharp rise in CRP levels

My CRP levels have been rising. In August they were 13.6 when I was on 4.5 of pred. I treated that as a flare and dropped back to 5. Then on the 17 0ctober...

My CRP levels have been rising. In August they were 13.6 when I was on 4.5 of p...

Hidcote

•11 months ago

15 Replies

GCA-Lyme Disease Connection?

Hi all, My wife is a long-time Lyme Disease sufferer, and has recently had a consultation with a biologist/pathologist. This person takes a blood sample and...

Hi all, My wife is a long-time Lyme Disease sufferer, and has recently had a co...

montebello

•11 months ago

5 Replies

CGM blood sugar monitors now available witout having to do the ZOE pogramme

I recently wrote a post about what I'd learned about how steroids and what and how you eat affects blood sugars from the Zoe programme (link to post below)....

I recently wrote a post about what I'd learned about how steroids and what and h...

tangocharlie

•11 months ago

44 Replies

Tapering schedule

Having been diagnosed with PMR early this year and having had a disastrous previous taper, I am now down from 12mg to 10mg. I have been reducing by 1mg every 5...

Having been diagnosed with PMR early this year and having had a disastrous previ...

landyjhm

•11 months ago

11 Replies

Prednisolene

Good Morning . I was diagnosed with Rheumatoid Arthritis nearly three years ago . My private consultant started me on 15 mg of steroids for a month followed...

Good Morning . I was diagnosed with Rheumatoid Arthritis nearly three years ago...

Portopetro

•11 months ago

10 Replies

Exercise and PMR

I am posting an update and a question. Since discovering I have PMR in Sept 2023 and starting on Pred at 15 mg, I have had a slightly bumpy start to my PMR...

I am posting an update and a question. Since discovering I have PMR in Sept 2023...

Indigo2417

•11 months ago

68 Replies

Should I care Pred?

As a PMR sufferer, I’m wondering if it is a good idea to carry, say, 20mg of Prednisolone when out and about. I understand that a sudden flare or, worse,...

As a PMR sufferer, I’m wondering if it is a good idea to carry, say, 20mg of Pre...

Mervetheswerve

•11 months ago

9 Replies

a contrast story

I saw my lovely GP today, I have been left to just get on with my taper since flaring in April. Now going down to 4.5 from 5. I thought I’d check in. GP was...

I saw my lovely GP today, I have been left to just get on with my taper since f...

Alazarin

•11 months ago

7 Replies

Tapering

Interesting -- I have been at 7 mg for almost two weeks. First time I did that I was totally exhausted so was told to go back to 8, which I did for a few...

Interesting -- I have been at 7 mg for almost two weeks. First time I did that ...

Paulagcl

•11 months ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2023

Emergency cardiac admission to hospital. Advice please.

Prednisone free for 3 weeks

Amlodipine

Timing of flu vaccine when on weekly Tocilizumab

eyes and Pred

Advice on medication

Not always Polymyalgia!

Tests for adrenal function

1mg Enteric Coated Prednisolone tablets

Swollen Hand Update

Vitamin D

When does it go?!

update on UTI

residual symptoms of PMR

Hip replacement 5days on!!!😵‍💫

PMR unstable after four and a half years.

Cost of tocilizumab

Latest update on Care for PMRGCA

Bowel inflammation - any link to PMR/GCA?

Methotrexate and Prednisone

Raised ESR, normal CRP

Advice about sharp rise in CRP levels

GCA-Lyme Disease Connection?

CGM blood sugar monitors now available witout having to do the ZOE pogramme

Tapering schedule

Prednisolene

Exercise and PMR

Should I care Pred?

a contrast story

Tapering

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