Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,884 posts

All posts for November 2023

Steroid Taper

I want a schedule to taper my prednisone 5 mg use. I believe it is called Steroid taper application

I want a schedule to taper my prednisone 5 mg use. I believe it is called Stero...

Hidden

•11 months ago

8 Replies

Let’s see? Bowel perforation and GCA Flare ?

I’ve been absent for a while…Reader’s Digest Version to follow. Though I haven’t been posting, I’ve been reading for a bit, and as usual….” You raise me up,”...

I’ve been absent for a while…Reader’s Digest Version to follow. Though I haven’...

Grammy80

•11 months ago

29 Replies

Biotin and ESR/CRP Testing

Good evening. I have been taking supplements - AdCalD3 (of course!), Vit K2, VitB complex magnesium glycerine/malate and fish oil - fairly religiously since...

Good evening. I have been taking supplements - AdCalD3 (of course!), Vit K2, Vit...

Burroughs123

•11 months ago

4 Replies

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Cutting a 1mg tablet into 4?

Having got down to 10mg I’ve been tapering prednisolone by approximately 0.5mg a month. I’m now at 1mg and looking to reduce further in a couple of weeks but a...

Having got down to 10mg I’ve been tapering prednisolone by approximately 0.5mg a...

Dorothy61

•11 months ago

50 Replies

Study in the US

Hi all, passing forward some info. I’ve participated in this group’s research in the past. They are sensitive, legitimate and responsive to questions. It is...

Hi all, passing forward some info. I’ve participated in this group’s research in...

PMR2011

•11 months ago

2 Replies

Methotrexate sensitivity

I found out this morning that I seem to have a sensitivity to Methotrexate. My liver function test result is 60 and after a break from the drug, it was 23....

I found out this morning that I seem to have a sensitivity to Methotrexate. My l...

Noni71

•11 months ago

8 Replies

Alternate day prednisolone.

I have been on Prednisolone since June 2018. I have gradually reduced the dose and got down successfully to 4mg/day. I have reduced further using DSNS but...

I have been on Prednisolone since June 2018. I have gradually reduced the dose ...

Whippet1960

•11 months ago

2 Replies

What would you do?

Hello, I haven't checked in for a very long time because everything had been going ok.I've been on Prednisolone for 3 years this Christmas after getting...

Hello, I haven't checked in for a very long time because everything had been go...

PMArrrrgh

•11 months ago

17 Replies

Awful chronic nausea

I have had PMR for over 11years and still on 11mgs. I have never been pain free. This morning I had a gastroscopy because I have been suffering worsening...

I have had PMR for over 11years and still on 11mgs. I have never been pain free....

suzy1959

•11 months ago

7 Replies

Indigestion

Hi Has anyone experienced Gastro problems secondary to Prednisolone

Harry8388

•11 months ago

30 Replies

Any issues having PMR, taking pred and having pneumonia and shingles jab?

Has anyone had any issues having these jabs and PMR? My main concern relates to having the jabs in my achy shoulders and just want to hear what you have...

Has anyone had any issues having these jabs and PMR? My main concern relates to...

Markandevie

•11 months ago

18 Replies

Clicking noises from shoulders and elsewhere since diagnosis.

Since being diagnosed a couple of months ago with PMR my joints click especially in my shoulders and knees and many people around me have winced and commented....

Since being diagnosed a couple of months ago with PMR my joints click especially...

Markandevie

•11 months ago

29 Replies

Vote for £1,000 to PMRGCAuk

I've received an email from the Benefact Group about their 12 Days of Giving in December. If anybody would like to nominate PMRGCAUK for a £1,000 grant, you...

I've received an email from the Benefact Group about their 12 Days of Giving in ...

Marijo1951

•11 months ago

5 Replies

Polymyalgia and Rheumatoid arthritis

I was diagnosed with PMR in June 2014. Over a period of about 7 years I managed to come off prednisone but after a time the PMR returned. Since 2022 I have...

I was diagnosed with PMR in June 2014. Over a period of about 7 years I managed...

Deemar

•11 months ago

7 Replies

Update on Dental Implant Surgery

A quick note to say that it all went well. I am currently on 3mg pred. The dental surgeon advised 10 mg the morning of the surgery. I was also given...

A quick note to say that it all went well. I am currently on 3mg pred. The denta...

Janet57

•11 months ago

6 Replies

have I got PMR or not

it’s me again. Had my appt. With Dr Mutkhyr yesterday as his nurse wanted, but of course I knew it would be pointless. Although I have this terrible pain &...

it’s me again. Had my appt. With Dr Mutkhyr yesterday as his nurse wanted, but o...

CavalierKC3

•11 months ago

9 Replies

Tocilizumab in the UK

I thought it may be helpful to share my Rheumy appointment yesterday. I have GCA and PMR and due to various reasons cannot tolerate Steriods. Instead I am...

I thought it may be helpful to share my Rheumy appointment yesterday. I have GCA...

WaltzG

•11 months ago

18 Replies

Tapering

So saw a doc today an English doc today here in Australia as this ongoing upper respiratory infection and the ‘out of breath’ symptoms were driving me nuts. I...

So saw a doc today an English doc today here in Australia as this ongoing upper ...

Slosh

•11 months ago

13 Replies

Learning

Really want to understand this. From someone who knows Trying to figure out how the group works.

Really want to understand this. From someone who knows Trying to figure out how ...

Penzie

•11 months ago

6 Replies

upping steroids short term to boost recovery?

writing on behalf of my mum who is getting over a respiratory tract infection (or not getting over it to be precise). She has long PMR (getting on 40 yr) and...

writing on behalf of my mum who is getting over a respiratory tract infection (o...

Gottarelax

•11 months ago

8 Replies

Steroids

Hi I have PMR ( diagnosed in April this year ) My rheumatologist gave me a steroid injection 3 weeks ago in shoulder for pain ( she was reluctant for me to...

Hi I have PMR ( diagnosed in April this year ) My rheumatologist gave me a st...

TedTheMaineCoon

•11 months ago

2 Replies

Flare humidity

it is a miserable cold day today and to me feels damp, though the humidity is only 66%. I feel rheumaticy. My pelvis and shoulders ache, but am confused as...

it is a miserable cold day today and to me feels damp, though the humidity is on...

Jane424

•11 months ago

5 Replies

Fatigue, Mood and Diabetes

I am new posting but I have read a lot here and it is fantastic support. My position is that I began treatment for PMR with 15mg Pred daily on 25th May 2023...

I am new posting but I have read a lot here and it is fantastic support. My posi...

kangaroojohn

•11 months ago

8 Replies

Now on the LVV journey too

I posted recently about being sent for a PET CT scan as I have leg claudication in addition to my usual PMR and GCA. Got my results and plan today. Scan...

I posted recently about being sent for a PET CT scan as I have leg claudication ...

Smellydog9

•11 months ago

20 Replies

my story

i have PMR since diagnosed in 2019. I had just turned 60. Okay anyway its 2023 and Im tapered to 1.5 mg. It has been a journey. PMR isnt fun in fact its...

i have PMR since diagnosed in 2019. I had just turned 60. Okay anyway its 2023...

Dragonflys

•11 months ago

14 Replies

MDS risk factors include PMR/Vasculitis

Hello, My son is at risk for MDS/AML so I've been researching these conditions and have discovered in several references that there is a higher risk for...

Hello, My son is at risk for MDS/AML so I've been researching these conditio...

kp60

•11 months ago

11 Replies

HERPES 2 increease of incidence as related to reduction in immune response caused by preds

As a modest Boomer, living life within a culture of sexual freedom, I managed to pick up Herpes 2 virus at some point. It wasn't a bother as it might happen...

As a modest Boomer, living life within a culture of sexual freedom, I managed to...

Bennijax

•11 months ago

29 Replies

update following Spanish hospital visit

Following from my last post I have now returned home from my month in Spain. The sudden onset headaches have disappeared and everything seems back to what is...

Following from my last post I have now returned home from my month in Spain. The...

Paul76

•11 months ago

2 Replies

painful hands, is it carpel tunnel syndrome?

For the past couple of months I have had painful hands (right more than the left but I am right handed) and as my appointment with my rheumatologist was well...

For the past couple of months I have had painful hands (right more than the left...

LadyPam

•11 months ago

36 Replies

New to PMR

Hi everyone -- I am new here and have had PMR for about five months now. I can't help wondering if the last Covid vaccine I received may have possibly...

Hi everyone -- I am new here and have had PMR for about five months now. I can't...

Charlotteab

•11 months ago

16 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2023

Steroid Taper

Let’s see? Bowel perforation and GCA Flare ?

Biotin and ESR/CRP Testing

Cutting a 1mg tablet into 4?

Study in the US

Methotrexate sensitivity

Alternate day prednisolone.

What would you do?

Awful chronic nausea

Indigestion

Any issues having PMR, taking pred and having pneumonia and shingles jab?

Clicking noises from shoulders and elsewhere since diagnosis.

Vote for £1,000 to PMRGCAuk

Polymyalgia and Rheumatoid arthritis

Update on Dental Implant Surgery

have I got PMR or not

Tocilizumab in the UK

Tapering

Learning

upping steroids short term to boost recovery?

Steroids

Flare humidity

Fatigue, Mood and Diabetes

Now on the LVV journey too

my story

MDS risk factors include PMR/Vasculitis

HERPES 2 increease of incidence as related to reduction in immune response caused by preds

update following Spanish hospital visit

painful hands, is it carpel tunnel syndrome?

New to PMR

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